I'm back (again)
 

Hi all,
just saying hello - it's been awhile since I've been here so thought I'd say hello before I start posting again.

My son (he's 20 now) had a large chiari (almost 2 inches) and had decompression at age 16, it was diagnosed at 15 when he started wrestling and symptoms pretty quick. He recovered pretty quickly after surgery and did well for 6 months. His NS cleared him to wrestle again (I know - I thought it was ok, after all the NS said it was ok, so family doctor agreed) and he started having problems off and on. Quit wrestling again. got better for little bit again.
Started working out at gym, and got a job there. Had problems again, probably due to weight lifting and every time we went into ER (major teaching hospital too, supposed to be one of the best in area) said "migraines". FINALLy, after about two years - we were validated - got into another specialist who recognized there could be scar tissue causing problems, which do not image, so that's why we were told "it's not chiari related" over and over. Modified his lifting routine and it got better again.
I was SO grateful to find GOOD NS. The NS that did surgery basically wanted nothing to do with it when it was done, just kept saying it wasn't related to chiari!

So, now age 20, 4 years later, and he is having a lot of back pain. Interferes with his sleep, walking etc....back to specialist tomorrow morning with more questions....

So, hello to all, wishing you well. I plan on just jumping in on conversations so just thought I'd say hi first.