NeuroTalk Support Groups - SYMPTOM MIGRATION: My Story

About ten years ago I began taking the antioxidant grape seed extract (GSE) in the hope that it would prevent, or at least delay the onset of symptom migration, and for ten years it appears to have done exactly what I hoped: I have not had any new RSD symptoms anywhere in my body.

Since some people never experience symptom migration this could just be my good luck, and if this is all I have to show that GSE actually works I might as well not say anything. There is more, however, and I hope that after reading the rest of this post you will decided its worth $10.00 a month to protect yourself from this awful complication.

There is scientific support for antioxidant protection from symptom migration, but that support is based on RSD as a disorder called ischemia-reperfusion injury (IRI), and NOT the result of nerve damage. During my nearly ten years at BrainTalk I wrote thousands of words explaining that nerves don’t do what RSD “experts” tell us they are doing. They really can’t.

After explaining why this can’t result from nerve damage I wrote about IRI and how it also begins with a physical trauma. I wrote about how IRI explains every sign and symptom of RSD, explaining exactly how it produces all three types of RSD pain; lower skin temperature; patchy osteoporosis; diminished hair and nail growth, and how it explains the one RSD sign the “experts” never talk about: Cyanosis.

I described the IRI process in detail, including the role of oxidants called oxygen free radicals (OFRs) in this disease. I said that physicians apply the topical antioxidant vitamin E to surgical wounds in order to prevent IRI from developing, and this is what led me to begin taking the oral antioxidant GSE.

In other words, I offered a scientifically sound rationale for delaying symptom migration that would only be valid if this really is an IRI. But I can’t prove RSD is IRI, so why should you pay any attention to this post?

Because of the story I’m about to tell you, the story of my experiences while taking, and then not taking GSE. I think its a compelling story and hope you agree.

As I said, I began taking GSE about ten years ago (a few months after the RSD spread from my left to my right foot), and have not experienced any new symptom migration; I have however, come close a couple times.

After taking 100mg of GSE every day for about two years, I noticed that about once a month the inside of my left wrist would turn bright pink and burn like a sunburn. I began to apply the topical antioxidant DMSO to the area three times a day, and after about three days the inflammation would subside.

I kept up this routine for more than a year and then got the bright idea that since the DMSO controlled the inflammation I could just use it a couple days a month and not have to spend any money on GSE. I stopped taking it and waited to see what would happen next.

I didn’t have to wait long: In just a few days both arms and both legs were bright pink and burned like a moderate sunburn. I realized the GSE had been doing a lot more than just protecting my wrist, and was scared to death that my now red, warm skin was about to turn into the cool skin and cyanosis of full-body RSD.

I began taking GSE again: 300mg daily now. I also smeared DMSO over my arms and legs five times a day. It took only two days for the inflammation to subside; I had been spared from a major disaster. If I had had any doubt that the GSE was worth the money, it was gone forever.

There is absolutely no explanation for the sudden onset of inflammation in both arms and both legs (exactly what happens in first stage RSD), except that the GSE had been preventing it. I had never had any such inflammation before RSD; have you?

RSD “experts” might say that the inflammation was a sort of reverse placebo effect: that I believed the GSE was helping and when I stopped taking it my mind caused the inflammation to begin. Maybe, but I’ll keep taking GSE anyway. Anyway, a “reverse placebo effect” can’t explain what happened next:

About five years ago I went into a very long emotional crisis; so severe that I decided my only answer was suicide. Not just suicide, however; I wanted to die in a very specific place, the place where I had proved to myself that I had the courage to die. Long story short: I could only drive about 150 miles a day and this place is more than 1800 miles away. I had to get the money to make the trip and plan it very carefully. All of this took time.

During this time I guess I forgot to take my GSE regularly. One morning I woke up and both arms and both legs were bright pink and burned. I had to drive 50 miles to buy DMSO, and of course began popping GSE like crazy. After a couple of days the inflammation subsided again.

I also realized that ending my life wasn’t my only option after all. I could have looked at the inflammation and decided I wasn’t gonna make it to Chiapas and just tucked a .22 under my chin, but instead I drove 50 miles to buy DMSO. That’s the sign of a man who wants to live.

Like I said, “reverse placebo effect” doesn’t fit this last scenario: I didn’t know I had forgotten to take the GSE, so its hard to imagine my mind tricking my body into becoming inflamed again.

That’s my story. If BT hadn’t crashed I could post all the stuff I wrote there, but nobody really read it there anyway. The bottom line is that when someone tells you a story like the one you just read, you need to give it some very serious thought.

I can’t guarantee that taking GSE will delay symptom migration. I can tell you that only one person who reported taking GSE later reported suffering symptom migration, while lots of people who don’t take it post about new symptoms all the time. I guess we can’t know for sure unless everyone here believes me and begins taking GSE. I know I’d like to know for sure.

Finally, as I wrote the line “...lots of people who don’t take it post about new symptoms all the time”, I realized that I have let a lot of people down. A lot of “newbies” never had a chance to read my story.

I guess everyone will have to get used to seeing this thread “bumped” a lot; like once a month…Vic