Pain all the time
 

My name is Julie , My 16 year old daughter Laken has always been healthy until this last 6 months. Laken was on top of a pyramid in cheer and she fell . she landed on her tailbone. After a trip to the ER we were told it was just badly bruised. After a few weeks she was back to normal and back to cheer. She told me that she noticed when she took her shoes off after practice and PE class her feet where purple but no pain. I called our primary and he said just keep a eye on it. after 2 months of this happening she started being woke in the night to very bad muscle cramps in her calf. one night it would not go away. after a trip to our DR he said we needed to run some test now that she is in pain. she had a MRI, MRA, CT of Head. so many blood test. where sent to many specialist as her pain kept spreading. after 6 months of DR's and test we still don't have any answers. We were told it could be a autoimmune disorder . I have researched so many and keep coming back to CRPS. We are now waiting on more blood work and 3 more specialist. but while we wait my daughter gets worse. her symptoms are now
Sever lower back pain, no feeling in toes , feet are ice cold most the time, feet and lower half of legs become mottled and deep purple while standing or sitting over 10 mins. tingling in back of head followed by bad headache ,shoulder pain, ankle pain, heart palpations, if legs get cold they hurt to the touch. nausea, She walks so slow and is in constant pain. No longer can attend school or do anything a 16 year should be able to do. I sure hope someone can give us an idea of what they think, Im so afraid of loosing my daughter and the DR's just cant find out what this is...

how heartbreaking for you. I am not in the health field so have no answers but just wanted you to know you are being thought of.

obviously, it happened because of the fall or something was already there that just came out about the same time. it sounds like docs have done all kinds of test to check for nerve damage or broken vertebra, etc.

all I can offer, if it is a neuropathic type of pain, if you dont want your daughter
loaded up with medications, I was introduced to a machine called an H-wave by a company in CA. It looks like a TENS machine but it is not. I started it via a health center and it helped so much, it was cheaper to purchase one for home use it myself. The website can explain how it works better than I can.

I have neuropathy from Lyme Disease and my pain has been severe but the h wave does help control it. I bought the unit about 9 yrs ago and the same gentleman who sold it to me is the technician and is always there to help.

I pray you find answers and solutions soon. D.

I am sorry to hear about your daughter's pain. I myself suffer from chronic pain and I can relate. I am not medically trained but will keep you and your daughter in my prayers.

I have RSD/CRPS
 

Hi,
I'm sickened to hear what happened to your daughter. I have RSD/CRPS. I had a feeling that half way through reading it you were going to say that. There are SO many symptoms of RSD/CRPS. I can't believe that it would spread like that. Mine started in my right foot then after having back surgery (for the rsd) it spread up my entire leg and into my butt. The only symptom I have is the burning pain but all the issues she has are classic symptoms. I would get her to a pain doctor some people here have mentioned going to neurologists. I know you mentioned specialists but I wasn't sure what kind she had gone to. It's a crazy condition because there aren't 2 people that have the exact same symptoms and story.

She so young to have to go through this. I wish her all the best!

The RSD/CRPs forum is at http://neurotalk.psychcentral.com/forum21.html
if you want to go there at any time.
Heather