Family Problems
 

Its been since Feb since all of this went downhill to where I'm unable to work or drive. A lot of pain, and doctor visits since that time. What my life consists of is just staying in my room, fan blowing, sometimes the window unit AC to keep me cool, and also constantly on my computer. When I do get up, I always seem to stretch, especially my back because it feels like It needs popping (if you know what that means). I don't have a real social life, most of it is online.

My mother and grandmother complain about how much time I spend on the computer, but it gives me an outlet. I have friends, but not the kind you see or even talk to everyday. Only time I really see anyone is if I go to the grocery story or church.

Another thing is that I like to sleep. I just want to have relaxing sleep too. But my mother and grandmother just complain about this as well, telling me to get up and move around and get out of the house. I keep thinking that there isn't nothing for me to do outside of the house, I don't like to be outside at all. I only go to the grocery story is needed but I don't like going because I get dizzy almost every time.

How do I talk to my family about this stuff, and get them to understand where I'm coming from? It is not that I'm lazy, it is just I don't feel like doing anything.

Hi skywalker1988,

I am going to agree with your mother and grandmother.

You are way too young to just sit, sleep, play video games and spend time on the computer. There is so much more to life.

If you continue living your life the way you are someday you will wake up and wonder what happened to your life. I can guarantee you the regrets and what ifs will happen when you realize how much of your life you wasted.

Life is what you make of it --- even with a disease like MS.

Maybe it's time to talk to a mental health provider (Psychiatrist, Psychotherapist) who can help you become motivated to enjoy life.

All of us with this disease encounter difficulties and pain but we don't stop living because of it.

You can live your life INSPITE of MS.

I just wanted to second Snoopy's vote and wish you a better day.:hug:

Has a doctor told you why you get dizzy? I wouldn't enjoy going out much if that was happening to me so you ought to find a doctor to address that problem. :)

I started with this MS stuff in Feb, but before that my life was worse. It seems that now being alone most of the time I feel better. Yeah I have pains with MS, but I'm just a loner. I know what it's like to have a good large amount of money and just go places. I fulfilled that. I've had so much hurt from other people, that I want to be alone, and being alone satisfies me.

maybe you could find something you'd like to do, even if it's alone...
like a craft, or painting, just something to take up some time and fill your mind.

do you like to read, like space, like nature or animals? try something like that.

This is a disease that can isolate you big time - often because others can't see your disability, sometimes because they are frightened of it, but - you can't let that happen.

Loneliness and separation from society will not help you in the long run, and the longer you let this manifest, the harder it will be. We all need a sense of belonging to community - whether it be large or small. This might be a family, club, a support group or a group of friends - or lots of other things. This group is amazing, but it can't satisfy the physical need of someone to hug, someone to pat you on the back if you do something great or to give you a gentle smack if you are being a goose.

Please be careful - isolation is a fast track to depression. So, please live your life as best you can (no matter how bad things are for me, there always seems to be someone that I know who has it a hundred times worse), Try and look through your pain and fear and find a positive - they are there - however deeply buried.

Good luck, and try and have a good day.

skywalker i am like you, i can't get around, and deal with debilitating pain. i spend most everyday online playing a time killing game. i enjoy it, and socialize with people around the world. and my sister and oher more productive family dont understand it. get used to it bud :hug:

I can totally understand this.

But you're so young.....and MS doesn't have to be the thing that stops you from living. Have you thought about seeing a therapist? It may help.

What if being alone is how I want to live?