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Bjnoble 11-16-2013 02:52 PM

Newly diagnosed w/small fiber neuropathy
 
I was diagnosed about a month ago with small fiber neuropathy, caused by an auto immune disorder. Unfortunately my Neurologist left the practice and moved out of state. He put me on 20mg of Prednisone and a small dose of gabapentin for pain. So far no results for the pain. On the plus side the prednisone has had an unintended success for my chronic plantar fascitis and both of my hands are almost pain free. I met with a Nurse Practitioner until I go to a new Neurologist next month. She wants me off the prednisone and upped my gabapentin dose, also consulted with her on-staff Neurologist who has not seen me, he said I did not have an auto immune disorder. I am confused and not yet willing to be off the Prednisone even though it has a number of side effects. I am thinking I will cut my dose of prednisone in half until I see new doc. Any thoughts?

mrsD 11-16-2013 03:17 PM

That is really too complex a question for an internet answer.

Firstly you should taper down slowly... sudden stopping is not safe. Pred suppresses your adrenals, leaving you short, with stopping suddenly.

People with inflammatory problems sometimes can take a small dose of Prednisone every other day and avoid some of the nasty side effects and still get some relief. But that should be discussed with the doctor.

If prednisone works for you then aspirin or other NSAIDs will work too. That is another topic for discussion.

St George 2013 11-17-2013 06:29 AM

Welcome Bjnoble :)
 
So nice to meet u. I was diagnosed in Sept of this year with SFN via skin punch biopsy of the ankle. It mostly affects my feet but is also in my hands. I was never put on prednisone for this but have seen many posters that have been on it and felt great until they went off it. I'm on gabapentin and have gone from 300 (May 2013) mg a day to 1800 mg a day....I'm now in the middle of titrating up to 2700 mg.

What dosage of gabapentin are u on now ? My SFN is diabetes/chemo related and I've only been dealing with this for 6 months now. Mine was a sudden onset after chemo ended.

I am personally scared to use prednisone for I have seem what my husband has been through using it for back issues.

Pls keep us posted and I'm sure you will be hearing from more people on here.

Debi from Georgia


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