Diagnosis tool for CRPS & Treatments
 

Freebird36 had posted this link in an earlier thread http://www.youtube.com/watch?v=6_Nzh...ature=youtu.be

It's an update on treatments for RSD/CRPS. I found it interesting. In this video the speaker mentions a site called trend consortium. http://www.trendconsortium.nl

While on this site I found this: Diagnosis tool for CRPS http://www.trendconsortium.nl/diagnosis/

I thought this was all very interesting. Thanks Freebird36!!

Trend are a group of 7 dutch University Hospitals and 2 pharmacuetucal companies looking into CRPS, nothing else like it anywhere else in the world

As a Brit, this is the most interesting page for me....

http://www.trendconsortium.nl/crps-e...course-of-crps

...because they state that out of 102 sufferers over 6 years, 16% still showed progression of the disease, and 31% still couldn't work. Not quite the same as the newest leaflet produced after the Bath patient conference (which I couldn't attend....grrr :rolleyes:) which says that around 7% of patients experience spread....

I wish these researchers and doctors and specialists and everyone would just start actually TALKING to each other and AGREEING about some stuff! I hate the way our NHS is putting such a false hope out there for new patients - I remember being told insistently and repeatedly by my first pain doc that I could beat this if I tried hard enough and put the work in...that it was up to me.... I mean really. FFS.

Bram.