pain
 

I went to bed about 8:00 p.m. took my meds.put the heating pad on,looked at my wonderful husband and said"I cannot remember a day that I have not had pain."Its really sad and scarey all at the same time.Right now my right leg is burning ,hurting, blotchy ,swollen and tight all at the same time.Plus nerve jerks..Its going to be one of them long nights.How can I sleep... I start praying,then I get a jerk,and forget what I was praying about..Gotta love RSD..but I do have Faith in God.We all have this for a reason,its Gods plan.How can we question..He only has the answers.:confused:

Hi Moosey, I can't sleep either. I have such a bad stress headache from my rsd and financial stress. I'm sorry you don't feel well either. I try to put a heating pad on my sore areas to help ease the pain a little and distract myself by watching a comedy on tv. A hot cup of sleepy time tea or warm milk helps me too. And then I try to remind myself that this too shall pass as I was told by my friends here in the past. I to have faith in God too, but I know it's not easy to cope with the relentless pain. It wears on us physically and mentally. Well, try to hold on and get some rest and remember that "this too shall pass." Take care and my thoughts and prayers are with you. I'm going to try to get some sleep now too. My headache finally seems to be subsiding. Bye for now.

hopefully better days
 

Thank you so much.Hopefully we will be onboard for a better day tomorrow.I better turn in I have to get up soon for work..its 12:45 a.m. need to get up at 5:30 so God Bless..Pleasant dreams

I'm so sorry moosey, it's a completely horrific and distressing disease, and utterly unfair. I know what you mean - when I read your post, I tried to remember my last pain free day. I can't. I can roughly state a month of a year (three years ago), but it's like I'm trying to imagine a different person altogether... Just hang in there and remember you're not alone, no matter how much it feels like you are. We do understand, and we're here in spirit if not in a practical way :winky:

I don't share your faith and it's reasoning, but I do understand your pain and suffering, and that need to find a meaning. I just wish there was an answer to any of this that made sense, or a treatment that actually took some of the pain away. It sounds like such a small thing to ask of a huge, complex and allegedly advanced medical profession...:rolleyes:

We must never give up hope. One day, perhaps soon, there will be a breakthrough and our lives will be improved at last. I keep reading the research and keep my fingers crossed!

Take care of yourself and I am thinking of you. Hopefully tomorrow will be a better day for you.

Bram :hug:

You can believe what you want but no all knowing all seeing all powerful caring and compashinate being would inflict this on anyone not even a politician.

Kevscar, I'm so glad you're on this forum. I am feeling like I've hit rock bottom between my health and finances right now and I really needed a laugh. I love how open you are and how you always say how you feel. I have faith, but do wonder sometimes the same thing. Thanks for lifting my spirits a little. Take care my friend.

I've been going through the same with my left leg. By the way God didn't give this to me. Its just something that happened. God doesn't give us bad stuff. He doesn't wish bad things on us. My opinion I know. I have kept my faith and love of God through 10 yrs of this. Nothing will ever make me doubt that. I may doubt a lot of things especially when I am hurting really bad but not that. We all need something to believe in. I'm sorry if this sounds mean and rude but this is how I feel. God has helped me through a lot with this disorder. He has helped me come to the conclusion that I'm not crazy, or a druggy, or that I did something to deserve this disorder. It's just something that happened. It has tested my faith at times but I have always gotten back on track.

you are not rude
 

I guess my brain was not working.sometimes I cannot think straight.I did not mean God did this,I meant I feel he is teaching me to deal with things differently..Sorry..I hate this RSD because my thought goes every where..God Bless keep smiling:grouphug::grouphug:

smiling
 

I hope you rested ..I know sometimes things get tough..I know its hard to get by with faith.I would love to share this...almost 5 years ago my Mom passed.I was on rock bottom.My x-husband and I split up,on valentines day.after awhile I moved in with the man of my life.He was my best friend.Well ,when my Mom died I had one goal and that was to clear her debt.My mom was a proud lady.Never wanted to owe anyone.Well I was going nuts.How do I do this.Paid funeral cost myself,then a few hospital bills..My car broke down too proud to ask for help.I received another hospital bill.i sent $100.00.Also a letter telling them I will pay every month.She in return from the hospital called me and said your Mom passed?I said yes I need to clear her name.Sent me a form.During that wait..My now Husband said one bill at a time.Pray about..Well God Blessed me ..I received a letter saying paid infull sorry about your loss of your Mom..Since then I am a Christian..God is Great,,He blessed me then a sinner,now a Christian..Please pray for his help..I was so Blessed....even though RSD sucks,it could be worse..:grouphug:

This disorder affects our minds and the way we think and process things. I have to put post its all over the house to remind me to do certain things. Yes I know I'm weird lol. I wish I could think and process things fast like I use to. I now need recipe cards to cook some stuff I have been making since childhood.