NeuroTalk Support Groups - Anyone having Nonepileptic Seizures?

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Anyone having Nonepileptic Seizures?

My wife has Nonepileptic Seizures and is using a self-hypnosis technique that has helped reduce her seizures.

Does anyone have NES and what treatments work well for you?

Teft

hello ther...

my bf was diagnosed with NES nearly 18months ago...it began with a shaking in his shoulder and a stay in hospital for 4weeks and then they began to get worse resulting in whole body shaking, seizure type thing and he goes out n all..its quite scary! he was admitted to hospital for 6weeks after that which resulted in them booking him in with psychologist...hes went from taking 10 fits a day til mayb 1 every 2months which is great coz we r living a proper life again...for him it was failing a teaching course that really upset him n left him feeling worthless n taking these seizures...we have learnt to live with them n fortunately he seems to b gettin better everyday..slowly but surely n he doesnt have to go bk n see the psychologist anymore..so please god this is him returning to proper health n i wish ure wife the same luck xxx

cathy - ireland.

Hi Teft,
Often times when a person is having a nonepileptic seizure it's known as a psuedo seizure meaning fake seizure. To the person having the seizure they seem very really but they often have them do to emotions controling them or the person will do it to get attention. Check out the following websites for more info.

www.epilepsy.com

http://www.neuropat.dote.hu/neurology.htm
when the main page comes up click on epilepsy and
go down to psuedo seizures.

Here's wishing you well and May God Bless You!

Sue

My non-medical belief (questioning this wording... meaning I have no basis for this other than my common sense), and for discussion purposes only, is that the body (and brain) is a marvelous machine, capable of incredible functions. When stressed by lack of proper nutrients, it can malfunction in many areas. Be it skin diseases, stomach upsets, vision loss.... I could go on and on. Why is it not the same for emotional issues. My understanding is that depression, stress, energy, can all be effected by nutrition. Why would this not be the first line of attack for this type of seizure?

Quote:

Originally Posted by cat_omagh (Post 103888)

i wish ure wife the same luck xxx

Thank you very much for your kind words and I'm so glad to hear he's doing better.

Teft

Quote:

Originally Posted by Porkette (Post 104501)

Often times when a person is having a nonepileptic seizure it's known as a psuedo seizure meaning fake seizure.

Sue,

Not true. Faking seizures is an extremely rare event. People with NES do not "fake" them. They are completely involuntary, as the Epilepsy Foundation points out. They have a psychological basis but are not under voluntary control. They are often conditioned responses (defense mechanisms) against traumatic psychological events often experienced in their early life.

Teft

Teft:

I think you're misunderstanding Sue - she is posting
PSEUDO - meaning "Fake, False, Unreal" ... She's not
implying that all pseudo-seizures are fake.

But on the FLIP-SIDE ......

However, we do have a problem with people who DO
"Fake" seizures - real pseudo-seizures for attention,
for example: we have had a couple of women here that
had performed fake (pseudo) seizures right smack out
front of the public so they would dial 911, because she
had this thing for paramedics. But I can't remember what
the other one was doing it for.

Both of them were which the newspapers labeled it
correctly as fake seizures first before implying it as pseudo
by itself without the seizures terminology if my memory
serves me correctly.

My newspaper archives should still have it as I posted it
several times in the EFA Forums (Epilepsy Foundation).
Then I posted another one in Georgia, from Atlanta Metro
area, and I can't remember the other locations - but every
one of them were women, performed in a public spot, in a
crowded area where they could be seen, where the chances
were very high that someone would dial for help.

It is frustrating to the Medics because they have to treat
every one of them as a real thing. There are cases where
some public have misinterpreted the episode where they
"thought" a person who was in need of medical help that was
not receiving it, and instead, was being handcuffed and put in
a Police Car and being hauled away (due to chronic repetitious
episodes of history of faking it all out), so the public outcry had
sparked a need for media exposure.

But many of us only hear about the "first part" of what appeared
to be a "mistreatment", never hearing the "second part", when
the media then informs the public that there was no mistreatment
and especially when the truth is surfaced.

Rare? No, I don't think so, I'd probably state it's "Uncommon".

Hi Teft,
I want you to understand that what I was trying to tell you southie explained very well. Here's wishing you well and May God Bless You!

Sue

Quote:

Originally Posted by Porkette (Post 107812)

Hi Teft,
I want you to understand that what I was trying to tell you southie explained very well. Here's wishing you well and May God Bless You!

Sue

Thanks Sue. I understand you clearly. The term pseudoseizure was developed quite awhile ago to describe seizures that were "not" epilepsy but also "not" fake. Fake seizures are called fake seizures. The use of the term pseudoseizure has now been withdrawn by the medical and psychological communities in favor of Nonepileptic Seizures. Researchers know that "malingering", or intentionally producing seizrues does occur, but it is rare when taken in the context of the total number of true pseudoseizures. I have many studies by that indicate this.

Take care,

John

Teft,

Can you describe the self hypnosis technique she is using? Hypnosis is a very powerful tool. There is soo many different techniques to use for each different situation.

How is she doing now?

Rick