Update on my IVIg therapy
 

Hello All,

Started IVIg therapy for my autoimmune small fiber neuropathy with autonomic symptoms 3 weeks ago and had 5 infusions over 5 days.
I go back next week for round two of 5 X 5. 1 month later, same thing, 5 X 5.
I am hopeful that this loading phase will really knock this stuff out of me for a while, at least that is what the Neuro thinks and I think it is possible as well.
So far I have alot more energy than I had before and hope to get back in the gym if my body will quit fighting me back.
The first couple of days went well, infusions were given at normal titration without issue. Had slight headache on 4th and 5th day, but pre meds made it go away. On Saturday, the day after the last infusion I had a nasty headache that lasted about 20 hours, then poof, went away while using ibuprofen. Will use tylenol next time.

N1

I'm so glad to hear you think it is working for you. That's great news!!!

Good to hear and I am patiently waiting for my treatments to begin as well. Take care!