NEW CRPS Institue in New York City
 

Here is a link to the press release

http://www.prweb.com/printer/11243687.htm

Does anyone have personal experience with this place?

~ Lottie:winky:

Thanks for sharing Lottie!! How did you find out about this.
Don't think I'll be able to go soon (I'm in Arizona) but this will
help countless others!!
Maybe this is another baby step further to getting some awareness
and research.

I happened to come across it while doing a google search about CRPS. Every once in a while I do that to see if I come across anything new. I was impressed that they actually named their center "CRPS" Institute. There is hope!!

WOW! Right on Lottie! Good find!! I had no idea. Sure wish I was closer to it though.

Thank you so much Lottie :)

What an amazing, to the point, let's-get-on-with-this kind of attitude. I read this wishing so much there was somewhere like this in the UK...we have the Centre for Rheumatic Diseases in Bath, but getting there is like trying to see the Queen lol, and they don't actively treat CRPS, but give their patients intensive physio, hydrotherapy and psychological counselling for a week. All of which is good, but feels much more like a 'this is it now, this is all we can do, this is learning to live with what you have left'...which lets be honest, none of us want to consider. Being out of options just doesn't seem right.

This new place sounds like it can contribute much to research as well, which is fantastic. Good on them!

Like you Lottie, I am thrilled that they have adopted the actual name of CRPS, and refer to RSD as its former name. I hope 2014 sees much more of the US embrace the new name on websites etc, and help to unify worldwide research and information.

Oh how I hope this could lead to some breakthrough that could help us all :)

Bram.

I think im going to call and atleast see what there wait list is. I believe my apt with Dr Schwartzman's sp? team is this year. I lost my paper work so ill need to call. I haven't decided between his team of drs since hes now gone, or a Dr in DC that's also known to be really good, and of course now this new place.

Thanks everyone! Tos - can you tell me who the doc in DC is? Bram - I pray that they are compliling data for research and not just a money making venture. I did clinical research for a career and I know it could be done if the right group gets behind it. Heck - just by reading our posts someone could glean a lot of data about how this disease presents and progresses over time.

Lottie, I've often wondered if the more enterprising and interested researchers and docs are some of the 'lurkers' on this site... It really is a complete treasure trove of facts and ideas about CRPS.

I hope they do. I wouldn't mind at all if it helped move things forward with this danged disease.

Bram.

Dr Chin at GW hospital

My wife and I know Dr. Chin. She performed outpatient ketamine infusions on my wife. She also performed Lidocaine infusions.

Someone on this site some months ago mentioned the new RSD facility in NYC. Don't remember who it was but thanked them for the info.