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-   -   Link between Ehler Danlos Syndrome and Pn ? (https://www.neurotalk.org/peripheral-neuropathy/199228-link-ehler-danlos-syndrome-pn.html)

melon 01-01-2014 07:54 PM

Link between Ehler Danlos Syndrome and Pn ?
 
I recently read the following article on my EDS forum and was curious if any one else here with weak connective tissue , or some related disease that affects it has any noticed any sort of relationship ?

For example whether they had their PN diagnosed prior to their EDS symptoms or after , and if improving their stability helped ?

Happy New Year !

melon

andybonse 01-04-2014 12:17 PM

Quote:

Originally Posted by melon (Post 1040808)
I recently read the following article on my EDS forum and was curious if any one else here with weak connective tissue , or some related disease that affects it has any noticed any sort of relationship ?

For example whether they had their PN diagnosed prior to their EDS symptoms or after , and if improving their stability helped ?

Happy New Year !

melon

Wow freaky I saw this thread I was thinking the exact same thibg. I have eds hypermobility and have dysautonomia so im guessing I have neuropathy too. A lot of people with eds have neuropathy what a coincidence? I think it is related some how deffinite.

melon 01-04-2014 02:50 PM

Quote:

Originally Posted by andybonse (Post 1041323)
Wow freaky I saw this thread I was thinking the exact same thibg. I have eds hypermobility and have dysautonomia so im guessing I have neuropathy too. A lot of people with eds have neuropathy what a coincidence? I think it is related some how deffinite.

Yes, it makes me wonder too if its a good part of the reason why I only get temporary relief from supplements and most of the other things people have tried here .

If nothing is addressing that problem specifically and the connective tissues role, what difference are new treatments going to make ? :(

m


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