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-   -   3.5 months setback - still suffering, symptoms changing... (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/199326-3-5-months-setback-suffering-symptoms-changing.html)

Marina22 01-05-2014 01:57 AM

3.5 months setback - still suffering, symptoms changing...
 
It's been 3.5 months since my setback (bumped heads with my son while he was hugging me, I was symptom-free for more than a year before that). I'm still suffering :(

Brain fog is gone now (yay!), I can handle crowds, watch TV and use a computer(limited). However, head pressure, fatigue and headaches are still there :(. I'm starting to get scared that these symptoms will never go away. Headaches have changed though. It's kind of on surface of my head, not inside (hope that makes sense).

I have two biggest concerns. I have a huge fundraising event coming up in February, which I have volunteered to chair (before the setback happened). Now I am concerned that I won't be able to handle it at all.

My second concern is that I have very good friends of mine, whom I didn't see for 7 years coming to visit me in March. they've never been to US and I am very excited to show them around. But will I recover by March? Maybe I shouldn't do my charity event? Any thoughts, ideas are welcome.

Thanks for reading this!

Margarite 01-05-2014 04:06 PM

It is really up to you, I know that it takes me about 3-4 months from each of my setback bumps to get to a settled state. It does not mean that I am better, but I am better able to handle the new symptoms and the old. Each person is different in how much they can handle, how much discomfort they are willing to deal with for the sake of the benefits of being active. I don't know if you could do the charity and then plan a week of relaxation and then plan a week of relaxation before and after your friends come for a visit.
Sometimes, I really need to just ignore the consequences and have a really great time, ignoring the pain and then the painful week or three that follow are still bearable because I had such a wonderful time.
But, as I said, each person's symptoms and lifestyle are different, so I can only say what I do.
Good Luck!
In Christ,
Margarite

EsthersDoll 01-06-2014 02:30 PM

I'm still not back to normal after 3.5 years - actually I still feel quite limited despite having recovered a significant amount.

You just never know with these things.

I recommend that you let your co-chair or assistant chair or the board of the fund raiser know right away that you may need to back off the project or take on a much less involved role. if you get better before the fund raiser then you can increase the help you give, but backing off now should give them time to adjust just in case you're not all better by then.

Let your friends know that you are recovering from a concussion. Most likely, you should be well enough to have a good time with them when they are here. But there is a chance that you will need to take it easy.

There are many work arounds you could use when they are here if you do end up needing to take it easy. But I think if you can avoid worrying about it for now, since it's so far off, then that might be best? Or you could consider postponing their visit?

Marina22 01-10-2014 11:01 PM

Thank you for your responses! Sorry it took me so long to reply - I've been very disorganized lately (I wonder why ;)) .

I have a meeting scheduled on Tuesday dedicated to my coming fundraising planning. I will let them know that I'm not as efficient as I was hoping I would be when I agreed to this. Maybe someone will volunteer as a co-chair - that'll be fantastic! The event is a disco dance and all the profit will be spent on a 5th graders graduation party (that's where my oldest child is).

I'll probably do just fine. I went to Canada in December to watch my nephew hockey game. It was 3 hours drive (hubby was driving), we spent the whole day in Vancouver. The game was at 7:45 pm and we drove home after that (I wasn't driving). I was extremely tired, but I was happy how I handled the whole trip considering that in addition to my concussion symptoms I also walk with a cane (I broke my ankle 5 months ago and I'm still limping).

As for my friends visit - no I can't postpone their visit (I wish I can). We've been planning this for years and it took a lot of effort from both sides to make it happen. But again - it's in March and there is always a chance I will recover by then.
Thank you everyone for reading this. I I pray for your recovery every day :grouphug:


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