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-   -   Need some information (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/199741-information.html)

irpuregenius 01-15-2014 06:13 PM

Need some information
 
Hey guys! I am looking for documentation that I can give to my therapist that states how bad ice and contrast baths are. Everything I read still supports that type of therapy. I would love to find medical journals if possible. Thanks and I hope everyone is having a great day! :hug:

Nanc 01-15-2014 06:47 PM

Quote:

Originally Posted by irpuregenius (Post 1043807)
Hey guys! I am looking for documentation that I can give to my therapist that states how bad ice and contrast baths are. Everything I read still supports that type of therapy. I would love to find medical journals if possible. Thanks and I hope everyone is having a great day! :hug:

Here are a couple of links to start:
http://www.rsdhope.org/ice-and-crps.html
http://www.rsdrx.com/rsdpuz4.0/puz_5.htm

If your PT insists on this type of therapy, you need to stop going there as they know nothing about treating RSD/CRPS and will only do you harm.

Nanc 01-15-2014 07:02 PM

Here is another link to a paper talking about spread of CRPS by Dr Hooshmand. Read thru the entire paper, but on pg 4 it mentions ice.

http://www.rsdrx.com/Spread%20of%20CRPS.pdf

irpuregenius 01-15-2014 07:40 PM

Thank you!!
 
I will definitely read and copy for my therapist. I am lucky enough to have a doctor and therapist who will listen to me and my ideas.:D

heatherg23 01-15-2014 09:22 PM

Search "Using Ice RSD". that's what I did when I found out about how bad ice is. 6 yrs to late.

BraveGirl 01-20-2014 03:59 PM

This is a great question. I have often wondered about this myself, as I have seen lots of anecdotal advice and opinions of doctors regarding ice, but have never seen any high level, peer reviewed research on the subject. Would love it if anyone has a journal article they can refer me to.

~Sage~ 01-20-2014 04:13 PM

Oh, they did that to me in the early 90s too. That was before I was Dx'd with RSD. No one knew anything then. Dr Hooshmand was on the east coast of FL, I was a the west.
Ice baths were so painful but who knew?

Nanc 01-23-2014 10:31 PM

Quote:

Originally Posted by BraveGirl (Post 1044735)
This is a great question. I have often wondered about this myself, as I have seen lots of anecdotal advice and opinions of doctors regarding ice, but have never seen any high level, peer reviewed research on the subject. Would love it if anyone has a journal article they can refer me to.

Did you check the links I shared? You should find it in one of those links to Dr Hooshmand's website.

RSD ME 01-24-2014 10:26 AM

My PT used ice on my rsd wrist for 5 months of the 6 months I was there. I didn't know until the sixth month when I started having pain in my wrist when she put the ice on that it was bad for rsd patients. I told her it hurt and she stopped doing it for the last month I was there. She said that happens with rsd patients sometimes. Well then why did she keep doing it? I wanted to ask her but she was one of those people who thought they knew everything and didn't listen to their patients so I didn't bother. After that happened I looked on rsd hope and found out how bad ice was. There are other rsd websites that also state that ice is bad for rsd. If I were you I would make sure you don't let anyone put ice on your rsd site. It can cause further damage to your nerves. I hope things work out for you and that you feel better soon. Take care my friend. Sincerely, Renee.


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