NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)
-   -   As If MS Isn't Enough! (https://www.neurotalk.org/multiple-sclerosis/19995-ms-isnt.html)

SallyC 05-19-2007 02:45 PM

As If MS Isn't Enough!
 
I also have Psoriasis on the palms of my hands and tops of my feet, and left ankle. I haven't had an MS attack in years, but I am constantly having Psoriasis attacks.:eek:

I know that Immune System illnesses can go hand in hand (pardon the pun), but this is driving me crazier than the MS. It Itches, it peels, it's red, it's ugly and there is no cure for it, either.:mad:

My Doc gave me some ointment to apply (steroid, of course), and sheepishly said. "this may help, but, you know, there is no cure".:rolleyes:

I've tried everything, but nothing makes it go away for longer than a day. Anyone have any magic potion out there?

End of Rant.....

AfterMyNap 05-19-2007 03:02 PM

Awe, Sal, that bites. Sorry you have to deal with that on top of it all. I have no idea how to make it go away, but I sure can help ya' feel a little better.

What'll it be?;)

*googling webtender for ideas*

Hey, Sal, if your hand itches, does that mean you seriously need to go get a lottery ticket?

doydie 05-19-2007 10:50 PM

Hi, I am a fellow psoriasis sufferer. Taclomex has been the best ointment for me. It is EXPENSIVE!!!!!! With my insurance it is $75.00. Without insurance I would be paying $325.00 My doc does have a $25 coupon that that can be used if you don't have insurance. Whoopee. My worst is on my scalp and an area on my back. The last time I was in he injected them with cortisone. I don't know how you effectivly treat the hands. Good luck

pals1107 05-20-2007 07:10 AM

Sally, I have plantar palmar pustural psoriasis, (hands and feet with blisters) it is the hardest type to treat. The only thing I have found that makes it go away is hormone replacement. I was on this for about 3 years and it totally cleared during that time.

Another thing that does seem to help some is tanning. All the creams and drugs never seemed to do a thing for me.

One more thing that seems to help is if you cover it for a few days, but this only helps for a few days before it rears it's ugly head again. It's a flustrating disease!
Pat

Judy2 05-20-2007 10:37 AM

Awwwww....for crying out loud!!!! :( What the heck is wrong with our messed up immune systems?? I'm so sorry to hear you now have to deal with this as well. I don't have any suggestions for help, but wanted to let you know I feel for you. Seems like I've read that these two go together sometimes like fibromyalgia, etc.

Good luck in finding something that helps! Hugs...

doydie 05-20-2007 11:58 AM

[QUOTE=pals1107;102345]Sally, I have plantar palmar pustural psoriasis, (hands and feet with blisters) it is the hardest type to treat. The only thing I have found that makes it go away is hormone replacement. I was on this for about 3 years and it totally cleared during that time.

I guess your psoriasis is completely different than mine. It's a wierd disease. I have different psoriasis on my back than whats under my arm pits.

If I did it right, this is the first time in all the years I have been on this forum or over on Brain Talk that I have done a 'quote"!!!! If I didn't do it right, sorry
If

DM 05-20-2007 05:57 PM

YIKES!!! Sorry about your new yucko's Sally...

I have added another autoimmune prob to my list this yr too... I started out itching and thought I had hives.... After 3 different Dr's ... I was dx'd w/Dermatographism, which shows itself in welts when something scratches or rubs against my skin.

I take RX antihistamines at timed intervals or I would be one big red blotch... The itching was just about to drive me outta the last little bit of mind I have left...

The Dr told me to keep Aquaphilic cream on my skin, which also helps along w/Hydrocortisone cream when it's real bad.... take care....:) :)

A friend of mine has psoriasis and it drives her crazy!!!!! I really feel for ya!

Teddy 05-20-2007 07:10 PM

Hi Sally, I haven't been here nor posted here in a while but I was lurking and had to reply to this.

My sister (and cousin) both have very severe psoriasis so I've spent some time looking into treatments for it, and I know exactly what a pain in the @*#$ it is.

As Pat said (Hi Pat!), sun exposure helps both my sister and cousin too. You can get a series of UVB treatments prescribed by your doctor, but that would probably be pretty costly, I'm guessing. There are, however, loads of sites on the net which sell home UVB lamps, which I don't think are all that expensive. I think my sister got hers on eBay.

Also, my sister found that the range of hemp products sold by the Body Shop were very helpful (I am Australian, but I'm pretty sure the range would be available worldwide). See this link : http://www.thebodyshop.com/bodyshop/...yId=cat1010003

Of course, there's also the heftier drugs (eg Methotrexate, Cyclosporine) which are prescribed for severe psoriasis which hasn't responded to other treatment, but it's my understanding that doctors (dermatologists) will mostly initially prescribe topical creams containing cortisone or salicyclic acid.

Hope this helps!

pals1107 05-21-2007 04:26 AM

Doydie, you have inverse psoriasis, that happens in the folds of skin mostly. I have had this for 21 years now. For 4 years back in the 90's I could barely walk, the bottom of my feet were covered with hundreds of tiny blisters, and also my palms and finger tips. I lost almost all of my finger nails and my big toe nails, it was horrible.

Be careful some drugs can make it worse, do your research, doctors don't. They tried to put me on Beta blockers, and that can make it worse, so they switched it to calcium channel blockers.


Hi Teddy! I tried the UBV treatment, it didn't help. PUVA, tar, Tegison, just about everything, nothing the doc's did helped, only the hormone replacement helped. And only natural sunlight or a tanning bed helped, there little light treatments never did a thing, I think it might have been weaker.

Right now it's not too bad at all, could it be the LDN? I wonder. I know it has all but taken away the IBS, and I haven't had a severe attack of whatever, (since I don't have a dx yet).

The day I went to the hospital and found out I have numberous lesions, I was looking on line abut psoriasis and read that you have a 4 times higher chance of having MS with psoriasis. At that time I didn't have a clue what MS was, it was strange that later that day the hospital was telling me that I could very well have MS.
Pat

kami 05-21-2007 08:02 AM

This subject is new to me, but I seem to have developed Psoriasis too.

Not nearly as drastic as for several of you, but very annoying. I have
several spots that itch terribly for a while, that I claw at til I draw blood.
I have had some limited success with Benadryl liqiud (topical) and the
over-the-counter hydrocortizone creams. Just slows the itch a bit. Oddly,
the symptoms will suddenly disappear for a while, and return weeks or
months later.

More weird autoimmune stuff? It never seems to end!:eek:

Interesting that the sunlight helps some...I haven't documented occurances to see if that is what changes things for me. Probably should.


All times are GMT -5. The time now is 08:13 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.