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-   -   New to Site with MG (https://www.neurotalk.org/myasthenia-gravis/199969-site-mg.html)

MG?me 01-21-2014 09:43 PM

New to Site with MG
 
Hello-All,
New to this site and new to MG. Now my doctors think I've had it for 20+ years.
Years ago extreme weakness foggy feeling arms falling asleep. It was so bad with weakness that my pc put me in the hospital for 5 days. Neuro consult said infection central nervous. 6mnths later test after test no firm answers. Years symptoms coming and going. Bone marrow biopsy. Always High white blood cell count. Aug 2013 so weak put on steroids. Saw Rheumatologist, lots of test possible lupus? See him this week for results. Neurologist possible MS, multiple mri's, spinal tap pain clinic Dr says Fibromyalgia.MS specialist more test not MS. Positive Myasthenia Gravis. Also multiple lumps under skin mostly in upper arms and legs. Today was day 2 of 5 day ivig treatment.
Appointment with Mayo in March.


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