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Help pls. Cereberal aneurysm, SNPN, IVIG
Hello. I'm a new member. I need advice on IVIG with people with cerebral aneurysm (diagnosed March 2013). I have SNPN (diagnosed late 2013, lead to discovery of aneurysm due to MRI) but mostly clean neurological tests. Got the results today on a paraneoplastic panel, normal, except for elevated acetylcholine receptor and binding antibodies which usually signals myasthenia gravis.
Which they do not think I have. I do not have any muscle weakness, per se, but I have had a decline in vision. No-one is talking about occular MG so far. They are following up with body CT scans, colonoscopy, mamo, etc., to rule out cancer, but are talking of auto-immune disease and prescribing IGIV over steroid therapy. Any thoughts would be SO welcome. I am overwhelmed by this new information given the two issues I am dealing with already. Please tell me also, where to post to get best results. Thank you. |
Nice to meet you!!
:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place. Click the following forum, there will be a number of fellow ones to assist you. Peripheral Neuropathy: http://neurotalk.psychcentral.com/forum20.html Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray: Darlene :hug: |
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