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-   -   Adding another piece to my PN puzzle (https://www.neurotalk.org/peripheral-neuropathy/200244-adding-piece-pn-puzzle.html)

Stacy2012 01-27-2014 10:54 PM

Adding another piece to my PN puzzle
 
I had blood tests done last week again for my thyroid, every 5 months or so since I am on medication. Well this time I added a test, the TPO antibodies test.

Result:
Thyroperoxidase TPO 578 HIGH range <35iu

Which in my mind says I have hashimoto. I go to the doctor in a couple weeks to talk about it, which I doubt he will do anything for it, since all my other thyroid labs came back within normal ranges.

While reading about this test it says hashi, lupus, and graves top concerns, and I am betting it is hashi. When I read about it, it did not specifically say PN but did talk about burning being a symptom. My number 1 problem.

Just another piece to the puzzle but now what. :confused:

mrsD 01-28-2014 08:33 AM

Hashimoto's can result in swinging values on the other factors.

We've had posters here who get hyper- thyroid after a period of
hypo....so you'll have to watch your testing carefully.

Stacy2012 01-28-2014 09:30 AM

So far my results do not swing at all but I only get them done every 3 months at first and now more like 5 or 6 months, so maybe I have to test more often. But I don't really understand hash totally yet, it seems nothing is really done except thyroid meds and maybe supplements, so it does not appear there is much more I can do since finding this out, but maybe it is why I still have PN symptoms in my feet when at first they kinda went away when I first started on thyroid meds and when I increase dose. (but then comes back)

pabb 01-28-2014 01:40 PM

Quote:

Originally Posted by Stacy2012 (Post 1046864)
So far my results do not swing at all but I only get them done every 3 months at first and now more like 5 or 6 months, so maybe I have to test more often. But I don't really understand hash totally yet, it seems nothing is really done except thyroid meds and maybe supplements, so it does not appear there is much more I can do since finding this out, but maybe it is why I still have PN symptoms in my feet when at first they kinda went away when I first started on thyroid meds and when I increase dose. (but then comes back)

Hashi's thyroiditis can be comorbid with celiac disease.

Stacy2012 01-28-2014 08:12 PM

Reading as much as I can about TPO and hashi...I wonder with all the inflamation it can cause if this is what is causing my pn and why the zflamend helped me, since it helps with inflamation.

But no matter what I read there isn't much on how to get rid or it or help other than diet and thyroid meds. :(

aggie 01-28-2014 08:24 PM

Thryoid fellow
 
:(
Quote:

Originally Posted by Stacy2012 (Post 1047014)
Reading as much as I can about TPO and hashi...I wonder with all the inflamation it can cause if this is what is causing my pn and why the zflamend helped me, since it helps with inflamation.

But no matter what I read there isn't much on how to get rid or it or help other than diet and thyroid meds. :(

Hi Stacy I have PN - postchemo - and I also take Oroxin as I had my thyroid removed. I have Graves Disease which adversely affected my eyes (pop-eye look). My endocrinologist who monitors my thyroid condition did increase my oroxin too but I do not take any other meds. I guess where I am going is to say that Hashimotos may also be monitored and treated with thyroid meds only. I hope so as more meds just add to a chemical cocktail and make diagnosis messy. Good luck! Aggie

hopeful 01-28-2014 08:25 PM

Hi Stacy,
I was told I had Hashimoto's when I went to John Hopkins. I had an ultrasound done and the tech went to get the doctor and he asked if anyone ever told me I had Hashimoto's.
Nothing changed with the dx for me. They just check my blood work about every 6 months. I think they only do that because I ask them to. I might ask for a TPO to be taken. I never heard of it before.

Stacy2012 01-28-2014 09:17 PM

Yes, it seems nothing is done about it, even if you get the test, all they do is give thryroid meds and wait for it to kill your thyroid off.

It's confusing to me that they test for it then do nothing about it.

I read selenium is good for lowering TPO numbers.

Hashi's cause great inflamation so I am determined to find a way to get rid of inflamation, which in turn will help my pn, I believe.

hopeful 01-29-2014 06:38 PM

I have read that hypothyroidism can be the actual cause of neuropathy. All of my doctors know I am Hypo but not one of them has mentioned to me that it may have caused my SFN. I wonder if it is even possible to determine that?

Stacy2012 01-29-2014 07:10 PM

Two doctors have told me my PN is from hypothyroid.

The first doctor said it right away even before the blood test. No, you can't determine for sure that PN is from hypothyroid. It's a doctors guess.


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