looking for Answers
 

Hi everyone

I have have seen a dozen doctors had every kind of test done. No real answers just endless medical bills. I would like to post and join in but I don't know where to go within the forums. I have had Restless Leg Syndrome all of my adult life with diabetes and sleep apnea for the last 20 years. The weird symptoms started about three years ago weak wobbly legs, poor balance, exercise intolerance the left side of my face felt fuzzy (like a peach) and a feeling as if there was a bubble in my left ear. No doctor has given me a diagnosis they shrug and say they don't know, tell me it is my diabetes learn to live with it, or treat me like a drug seeking hypochondriac. Recently I began to intermittently flush in the afternoons, and sweat excessively on one side but not necessarily at the same times. The doctor told me they were related and probably related to one of the medications I was taking, and ordered the same blood tests that every other doctor has ordered over and over again, with the same nothing shows up results. Now I am having increasing body jerks. Not the falling asleep kind the kind that happens while awake and relaxed. I feel them coming on and I can't stop them. It starts with a kick of my legs progress in a wave up my body and ends with a head nod and moan. I am getting these at all times now even had a few at work. I am afraid if I go to a doctor he will tell me they are normal. I keep wanting to ties these symptoms together, MS something, but nothing ever shows up.

Welcome to NeuroTalk:

Diabetics lose magnesium in the urine, (it is a fact but why is not yet understood). So when mag gets low, you get muscle spasms, RLS and other problems. I'd start with SlowMag twice a day.

Here is the SlowMag website:
http://www.slowmag.com/
This dose of twice a day is 1/2 the RDA and safe to take.
SlowMag was initially made for doctors to give to their patients who take diuretics, or who do not eat the right foods.
This website will educate you to help stay ahead of the loss you have thru the urine.

You can also get a lotion to apply to your legs... Morton Epsom Lotion. It is also at Walmart where the SlowMag is more affordable as well. Amazon online also sells the new Morton lotion.
It is really wonderful...and many of us here use it.

You need to ask your doctor for B12 testing. Don't settle for "normal"..but instead get your numbers. You should be at
400pg/ml minimum...which is the NEW low cut off point.
Watch this amazing video...and follow up on this critical nutrient.
If you take Metformin, you can become low in B12. Also GERD medicines that lower stomach acid block B12 absorption.

Here is the video... please watch it all.
http://www.youtube.com/watch?v=BvEiz...ature=youtu.be
Because doctors remain BLIND to this need, YOU have to deal
with this and become your own advocate.

Thank You mrsD

Your willingness to read trough my ramblings and respond is greatly appreciated. I have been taking magnesium supplements, Magnesium malate, I understood it to be the best. I will look into the slow mag. I just ran out of lotion so I will give the epson salt lotion a try. My B 12 is fine I even had to back off it a little, after a blood test showed it to be high. Again thank you for your response. If you have more ideas or anyone else has any ideas I am willing try anything and everything. It is much more pleasant to try things recommended by others than put up with the frustration of doctors. I have had well beyond my fill of that.

"high" B12 is benign. I would continue using it.

We have many posts about this on NeuroTalk:
Here is my B12 thread.
http://neurotalk.psychcentral.com/thread85103.html

A high value is desirable for those with neurological symptoms.
Most doctors have no clue ....

What was your reading, BTW?

I don't remember what the lab work showed and I can't find a copy of it. I am still taking B12. I alternate every other day a B Complex with 50 mcg 800% of daily, with a multivitamin that has 9 mcg 150% of daily.

Greetings!!
 

The amount of B12 in your current vitamins is not high enough to be therapeutic if you have either a DNA mutation (which is common) called the MTHFR polymorphism. This would result in the cyano form in the vitamins not being activated in the body to the active form called methylcobalamin. If you have low stomach acid then intrinsic factor will fail to aid cyanocobalamin absorption as well.

There is a study that measured B12 absorption from oral forms.
http://www.ncbi.nlm.nih.gov/pmc/arti...able/T1/#TF1-4
This study compared injectable and oral for doses up to 1000mcg.

The result is that with oral 1000mcg only 13mcg are actually making it to the blood stream where it is needed.

Without knowing your actual blood test results, it is not possible then to know if you are below the new 400pg/ml cut off. Labs still report very low levels as "normal" and doctors then tell patients they are okay, when in fact they are quite low. Low blood levels then cause low levels in the brain and spinal cord, and with time, there is deterioration in nerve functions throughout the body.

So it would be best to get your actual values from testing. Other countries use another concentration than pg/ml, so you need that part of the numerical result as well, so it can be converted to pg/ml.

This is my B12 thread:
http://neurotalk.psychcentral.com/thread85103.html

Don't fall thru the medical cracks, that exist today for this crucial nutrient.

Interesting stuff mrsD I will try to find the lab work and post it. It may be the weekend before I can look again. What do think of sub-lingual B12?