I'm at a loss right now
 

I have been diagnosed with syringomyelia for the past 6yrs. And am disabled due to it. I have just worked though my pain because the Dr's. Really aren't familiar with it so I get a lot looks like I'm crazy, I even had a Dr. To tell me that the syrnix is not causing me any pain, for a while I was thinking it was all in my head so when I would feel the pain I would ask myself now am I really feeling this even though I knew that I was feeling pain and I know just where I was feeling it. But now the pain is getting worse it is effecting simple daily chores. It is effecting my breathing, my neck hurts and goes down to shoulders elbows. I can see its getting worse. I'm getting very depressed and it's causing problems with my husband because he has to be at work at 5:30am and then when he gets home he has to do the house work. He complains through it which makes me feel worse. Can someone please tell me how live my life through this.

I don't know how many drs you have tried, but maybe the members here can give some names of experts in your area, if you share your location.

I am in the Kansas City, MO area

There are not many in MO.

Only know of JeroenCoppens.MD.com

you may have to travel dr. Frim in Chicago

or dr Menenz in Iowa

or from the Wacma site



Dr. Parley Madsen, III,
Neurosurgeon
Microsurgery and Brain Research Institute
6725 Chippewa Ave.
St. Louis, MO 63109
314-644-7111
Fax 314-644-3113

Dr. David G. Yingling, M.D.
Cape Neurosurgical Associates P.C.
3129 Blattner Drive
Cape Girardeau, MO 63701
573-339-0900