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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   CRPS tradeoff... (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/201709-crps-tradeoff.html)

Russell 03-04-2014 05:25 PM

CRPS tradeoff...
 
Well! After trying different cocktails of meds it seem that I have to settle to be a little groggy all day to have releif. There's still pain but it's managable.
Do any of you have this dilema?
I still get spikes when triggered by stress, wheather, physical exursion, yadda yadda yadda, same old culprites that we all deal with.
This monster really sucks...

fbodgrl 03-04-2014 08:46 PM

I hear ya! I have to nap usually a couple times a day. When I'm awake I'm usually still groggy, but I take the trade off for some relief.

~Sage~ 03-04-2014 09:09 PM

Hahaha, it's 9pm and I just awoke from a 4-5 hr nap! :rolleyes: just in time to go to bed. Oh wait! I'm already there! :wink:

GucciMamaRSDFighter 03-05-2014 11:22 AM

Hating life!!!
 
I hate the pain, the pills (feel like a lab rat), the tests, the surgeries, and the worrying of my future.

AZ-Di 03-05-2014 04:02 PM

Well, it helps that I'm blonde (ha). It used to be a joke, but now
I feel as if I'm stuck in "dumb blonde" mode when I do
need to take all the meds. I'm prescribed & don't get me started on
the memory lapses + I get "Versed" with my nerve blocks.

Vrae 03-05-2014 04:14 PM

Quote:

Originally Posted by GucciMamaRSDFighter (Post 1054984)
I hate the pain, the pills (feel like a lab rat), the tests, the surgeries, and the worrying of my future.

Me too.. but I am loving your name! :)

Vrae 03-05-2014 04:16 PM

Quote:

Originally Posted by AZ-Di (Post 1055032)
Well, it helps that I'm blonde (ha). It used to be a joke, but now
I feel as if I'm stuck in "dumb blonde" mode when I do
need to take all the meds. I'm prescribed & don't get me started on
the memory lapses + I get "Versed" with my nerve blocks.

OMG... you too? :D on every level.. even the blonde hair lol <sigh>

Russell 03-05-2014 05:05 PM

Quote:

Originally Posted by GucciMamaRSDFighter (Post 1054984)
I hate the pain, the pills (feel like a lab rat), the tests, the surgeries, and the worrying of my future.


Hi Fighter,
Try to remember this little saying:
"Any day above ground is a good day "...

LIT LOVE 03-06-2014 10:29 PM

With opiates you can take a much lower amount of time release than if you try to regulate your pain (more frequently) with immediate release. Finding the most ideal combo and when you take them is a matter of trial and error.

Also, don't ignore the role food (especially carbs) and exercise can make on your grogginess. Things you might have been able to get away with prior, you may no longer be able to. ;) Cue a line of dancing bananas!

Kevscar 03-07-2014 12:38 AM

It could be worse, I have a neuro-receptor disorder which means I get instant immunity after one dose of any medication whether orally or injected so I have to fight on willpower alone


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