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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   am I alone with this?? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/201793-am.html)

painman2009 03-05-2014 09:22 PM

am I alone with this??
 
so I had an MRI and while in it it felt like all the RSD affected areas where being ripped away from me all at once.. has any one else had this happen ..



also the skiing on my feet is peeling in large chunks.. extremely painful and the layers are like 1/4 inch thick.. and it is a constant thing lately is this a common rrsd thing too??

Jenna Delaney 03-06-2014 12:31 PM

Quote:

Originally Posted by painman2009 (Post 1055100)
so I had an MRI and while in it it felt like all the RSD affected areas where being ripped away from me all at once.. has any one else had this happen ..



also the skiing on my feet is peeling in large chunks.. extremely painful and the layers are like 1/4 inch thick.. and it is a constant thing lately is this a common rrsd thing too??

Me foot peeled the same way :/ It has stopped peeling now

AZ-Di 03-06-2014 12:55 PM

I had the extreme skin peeling in the beginning, but it stopped.
As for the MRI, I never got one. Do you mean "ripped away" in a good way
like taken away, or as a painful ripping feeling?

alaska49 03-07-2014 11:35 AM

I have issues with mris now I have to be totally sedated as the vibrations from the mri puts me in flares and my body just burns. Being sedated really helps for me

painman2009 03-11-2014 10:30 PM

Quote:

Originally Posted by painman2009 (Post 1055100)
so I had an MRI and while in it it felt like all the RSD affected areas where being ripped away from me all at once.. has any one else had this happen ..



also the skiing on my feet is peeling in large chunks.. extremely painful and the layers are like 1/4 inch thick.. and it is a constant thing lately is this a common rrsd thing too??

The feeling is a ripping feeling like the flesh, muscle,and bones are being ripped apart...I have asked my dr,s and PM just said "INTERESTING" my neurologist is clueless,,, so who else do I ask.. my spine specialist is just that ..spine My PCP isn't handling this case as she doesn't take COMP.. its scary.. and probably the worst pain I have ever felt..plus the after effects just won't leave me alone now...

heatherg23 03-12-2014 12:58 AM

Quote:

Originally Posted by painman2009 (Post 1055100)
so I had an MRI and while in it it felt like all the RSD affected areas where being ripped away from me all at once.. has any one else had this happen ..

I've had an mri since my rsd started but never had any problems from it

HeidiB 03-12-2014 01:15 AM

I just had an MRI this past Wed although it didnt feel like my skin was being ripped off (i know that feeling all too well so sorry ur dealing w/that) I did deal w/it setting everything off. I could hardly move afterwards they brought a wheelchair out for me but I was so set on just gettin out the door I said no thanks & my mom could just see the pain in my face she got me in the car & headed home which felt like hours. I was so glad to get to my meds after I got home I didnt think to bring any w/me so now I know for the next one I guess just not sure how long til I have the next one done. As for the peeling skin I cant say I have had that happen sounds painful Im so sorry..Here if u need to talk tho anytime I'll be thinkin of you all wishing good things for everyone

Brambledog 03-12-2014 11:17 AM

I had an MRI yesterday with no problems, although I did have a few weird muscle ticks at times, particularly on the heavier sounding scans. I always get weird sensations in them from the vibrations, but luckily not much pain, and I see colours flashing if I close my eyes.... The only time I've mentioned it to a doc, they said pretty much the same thing! "Interesting..." :rolleyes::D

Sorry you have such pain in them, must be horrible. hope you feel better soon :)

Bram :hug:

Hana 03-12-2014 01:58 PM

For the first time last week I had an unbearable experience... It's the darn vibration that some of us as so sensitive to. I never had trouble in the past, but now with inflammatory processes going on all through me have gotten worse, I am reacting to everything... I'm deeply fatigued now with this.

Best to you all. Keep up with the rest and being good to yourselves.. :hug::grouphug:

birchlake 03-12-2014 07:11 PM

Isn't it just fricking incredible all of the unique symptoms we have with this beast???

I have had MRIs with no additional symptoms but boy, with CRPS.......as the old saying goes......your results may vary.

Tough to stay on top of things. I'm always so ultra-nervous when I feel something new on top of the laundry list of symptoms that I'm used to by now.

And I need a knee replacement to boot. Not going to happen until I can't walk.

I have been using meditation in the mornings to help me with pain control. Sounds new age, but folks....it really does help. As much as the meds seem to do anyways. I'd throw the kitchen sink at this if I could just do without my kitchen sink!:crazy:

Hang in there Painman. Tomorrow is another day.


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