NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Arnold Chiari Malformation & Syringomyelia (https://www.neurotalk.org/arnold-chiari-malformation-and-syringomyelia/)
-   -   Support Group in South Africa? (https://www.neurotalk.org/arnold-chiari-malformation-and-syringomyelia/201807-support-south-africa.html)

sam2012 03-06-2014 05:54 AM

Support Group in South Africa?
 
Hi special Arnold Chiari Members.

I live in South Africa.

Do you know of anyone living in South Africa as well?

Thank You,

Take care

Samantha

nicci83 04-17-2014 09:50 AM

South Africa
 
Hi

I live in South Africa, Limpopo have chiari malformation. :p

sam2012 04-24-2014 10:34 AM

Great to meet a chiari friend
 
Quote:

Originally Posted by nicci83 (Post 1064157)
Hi

I live in South Africa, Limpopo have chiari malformation. :p

Hi

Great to hear from You Nicci

I too live in South Africa, Johannesburg.

How are You coping with Your ACM symptoms and condition?

Would love to hear more about you and what you have been through.

Have a great eve ahead.

Take care

Samantha

nicci83 05-03-2014 12:29 PM

Sam
 
Hi.


Well I am doing ok. Just a problem getting medicine for these headaches. :eek: We are not so lucky as the people over seas.

Had the decompression, Dr. J. Steyn at Wilgers did the op. Help me all the way but last year said he has nothing more he can do for me.

:confused:

Guess its just how it is.

Wow someone in SA with Chiari:):p

AngelNel 05-22-2015 05:17 AM

Hi,

So glad im not alone!

I was diagnosed 5 years ago, Type 1 with a 7.2mm protrusion.

I was on strong pain meds for a year but have been going strong without them for 4 years apart from over the counter pills. I have been suffering with bad headaches the last 2 months and its just not going away! I have made an appointment but can only see the doc in 2 months.

How have you been coping and have you gone for surgery?

Take Care,

Angelique - SA

garyk007 05-26-2016 07:21 AM

Chiari
 
Hi Angelique

My wife has been diagnosed with a 5 to 6mm Chiari by DR Tuewen at the Olivedale.

Would love to get in touch.

razzle51 06-06-2016 09:01 AM

THERE IS ALSO A group on FB for sm in s africa which also has to do with chiari

Syringomyelia - South africans living with SM

Gillie 08-09-2017 11:32 AM

Quote:

Originally Posted by sam2012 (Post 1055181)
Hi special Arnold Chiari Members.

I live in South Africa.

Do you know of anyone living in South Africa as well?

Thank You,

Take care


Samantha


Hi Samantha.

I live in kzn. Also Chiari type 1. Have decided against surgery for now.

LucilleBrand 04-11-2018 05:46 AM

Hi I am from Vredendal (West Coast) and have Syringohydromyelia of the cervicothoracic junction, C7 through T2 - don't have any other info and don't know what it is. Specialist is not concerned, I need to go back after 3 months.

Flerrie 11-25-2018 05:52 AM

Hi, are you still around on this group?
 
Hi, are you still around on this group?


All times are GMT -5. The time now is 05:56 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.