No relief, no help. I'm pretty much done.
 

Had the nerve block fri, and today I feel like i'm dying!
Pain is just as bad and worse in the ditch of my arm. I rly didn't think it could get worse.
Called my pmd and they just casually tell me to come in on the second of apr.
Taking 30mg of hydrocodone 3x a day and NOTHING STOPS IT!
I just want to go home

CaseyB I'm so sorry. I'm sending up :smileypray: for you. It's a scary place in life when you can't get the help that you need. If you need to,go to the emergency room. Brokenfriend :grouphug::hug:

dear Casey
please don't give up
please do not let the pain
the "monster pain"
the pain of no return
my heart pleads with you
i was just writing how many
have gone in my life
evil lurks
Brother please carry Casey
Father you wake us up
every morning
sometimes waiting for the sun
to rise because the pain
robbed me of sleep
your pain so great you yearn
to go home
given what you can handle
you just so tired of it all
i know i have been there
it is a place you must have faith
it is the way it is
we can in our faith
this you must not let go of
and you may think to yourself
she has no clue what i'm going
through
trust me i know
i can only pray i can offer
my own experience strength and hope
i cried for a long time to let me
just not wake
i have all these pills
i have to take the rest of my life
a recovering alcoholic twenty three
years i don't count
just know the obsession is lifted
by the grace of God
and to now be a physician induced
addict because of the meds i take
and my pain is never under a five
and to be in such a bad day
you would think i would be entertaining
my meds
never this is where i feel robbed of
my sobriety i worked darn hard for
still make meetings
but my point
it would be so much easier to pick up
a drink
so much cheaper to kill that "monster pain"
i am worried and concerned about your spiritual pain
i beg
i am imploring
please hang on
in addition to my physical pain
my spiritual pain was being robbed
first by my pain
inability to work
basically not the person i was almost 4 years now
my feelings were magnified by a antidepressant
called Lexpro was on Prozac
had to switch meds because it interfered with my
Tamoxifen cancer meds found the lump trying to
recoupe from second cervical neck failure to fuse
the first time having to have the second one that
has left me in worse shape having the pain before
any surgery
now two specialist afterwards said
they would not do any surgery because there
are so many things going on
all this aside
going through menopausal changes
extreme hormonal
i called it
"the perfect storm"
left on my bed
begging to please please
bring me home Father

not yet
he has me wake still
and i now still thank him
for another day

i would ask you please
talk to someone
please reach out to
our Father
his son Jesus Christ
no one can deny a man
call Jesus who left us with so much
a good kind man
taught us to love on another
i cannot imagine the pain
Mother Mary went through
as i am a mother of four
and a grandmother of one
she will be three soon
she has been my angel
in disguise
and this place that has helped me
stay together
keeping up the faith for mine
was no more
until i understood
it be something from my genetic
make-up
my sister two years younger
a father an amputee at his prime
early twenties
had me at twenty nine
there is a way to help cope
with the monster pain
not let it take your SPIRIT
your angels do call upon
loved ones who have passed
to help you
in spirit do not let go
do not let the devil win this
terrible sometimes invisible
pain and there be no person
who dares to say it's in your head
we have no choice in this one
i have opened up to be receptive
to humanly no other explanation
other than divine intervention
ask for it see it speaking from experience
please hold on please in the name of Jesus
please hold on know I care
me

Hi Casey, I'm sorry you're in so much pain. I too have rsd and understand what you're going through. If I were you I would ask you pm dr about taking neurontin along with your other pain med if they can be combined. I take percocet and neurontin and the combo helps alot more with the pain then if I just took the percocet alone. I take them both three times a day for over three years now. I take 600 mg of neurontin/gapapentin 3x daily and 5/325 mg of percs 3x daily. They help me alot more then the 8 nerveblocks I had done early on in my journey with rsd. Don't give up. You just need to find the right combo of drugs to help you with the pain and the right pm dr to prescribe it for you. Also beware of SCS. Sometimes some pm drs try to push that. I didn't do it because my neurologist said it was too risky because of chance of infection which could make my rsd worse. It's up to you but I decided to stick with the meds for now. My neurologist also prescribed prednisone early on for a few months and that helped more then the nerveblocks. It brings swelling down which makes it possible to gain more movement before atrophy sets in. I will pray that you feel better soon. Sincerely, Renee.:hug: