NeuroTalk Support Groups - SFSN sucks, yah know ? Hiya I'm older, not new-haha.

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- - SFSN sucks, yah know ? Hiya I'm older, not new-haha. (https://www.neurotalk.org/new-member-introductions/204523-sfsn-sucks-yah-hiya-im-haha.html)

SFSN sucks, yah know ? Hiya I'm older, not new-haha.

Hiya :) After 14 months of pain, I finally found a neurologist that sent me to Johns Hopkins Hosp. and they performed a 3 hole punch biopsys and diag'd me as have SFPN, like 5/mm at the ankle, mostly fragments and 29/mm at the upper thigh. Bless the neurologist, whom I now have on my Xmas list, lol. 2 different single hole biopsys handle'd by a different facility had me as normal. Bah !
I also suffer from chronic OA, a work place accident busted up both my arms over 13 yrs ago and CMP has screwed up my knees for far longer. Along with both rotor cups being damaged from the accident, just now given me alot of pain, one needs surgery.
So in about 2 months the recommend'd pain managment specialist will be able to see me, so we can discuss that option. Up til recently, I took a very small amount of pain meds, I just put up with the pain. I'm told I have a high tolerance, I say "why cry, the pain won't lessen any, lol"...More bloodwork/testing scheduled soon, gonna test AC1 ect ect more.
Been disabled 6 years now, but I bust my tail around the house, just ask my spouse, haha. I exercise, it's good for the OA, I eat what's "good for me", shy away from the fatty foods and such.
And I exercise my mind, alot. Have too many hobbies, lol. Alot of projects, but that's good also, keeps me busy. But my spouse is an angel, I tell yah. Sticking with me for over 30 years now. SPouse says that it takes too long and too much effort, to break in a replacement model. Hah ! Thanks for having me. Whew, nice too get all that out of me ! :grouphug:

Hello there Anaberration :)

I said I wasn't going to reply to anything because my hands/fingers are killing me BUT.....just had to say I enjoyed your post. Made me laugh....out loud :)

I have SFN dx'd via skin biopsy at ankle only in Sept 2013.....my A & C nerve fibers are 0...zero...nada.......complements of diabetes and then 6 wonderful rounds of chemo (taxol/carbo).

I've been married for 34 years and I started receiving disability in Nov 2013....my hubby said he guesses he'll keep me around since I'm getting a check ..... really ?

Take care and look forward to seeing more posts from you :)

Debi from Georgia

Cute handle—works on a couple levels (at least). ;)

Welcome to the bus.

Doc

Quote:

Originally Posted by Dr. Smith (Post 1069772)

Cute handle—works on a couple levels (at least). ;)

Welcome to the bus.

Doc

Thanks for the warm welcomes, here and in other threads :)
Having a bad morning, but oh well-
As long as I have my health, all is well-muwhahaha...