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-   -   should I change toothpaste (https://www.neurotalk.org/myasthenia-gravis/204822-change-toothpaste.html)

perrym 05-23-2014 08:58 PM

should I change toothpaste
 
In searching the internet I have found some saying that fluoride can exasperate MG. In the morning when I am usually at my best when I brush my teeth I have a hard time spitting. Sometime I can't at all. Though I've never looked for a toothpaste without fluoride I wouldn't think it would be that hard.
Has anyone else experienced this?

suev 05-24-2014 01:39 AM

don't know the answer - but I use fluoride paste with no issues.

Could it be that your tongue / pallette is tired from the mechanics of the brushing process? I suppose the only way to tell is if you were to try brushing without any fluoride and see what happens.

perrym 05-24-2014 09:46 AM

Quote:

Originally Posted by suev (Post 1071316)
don't know the answer - but I use fluoride paste with no issues.

Could it be that your tongue / pallette is tired from the mechanics of the brushing process? I suppose the only way to tell is if you were to try brushing without any fluoride and see what happens.

I wondered that also if it was just tiring my mouth out but it's easy enough to just try without fluoride.

AnnieB3 05-25-2014 01:29 AM

Among the many things wrong with fluoride use, one of them is the potential to act as a cholinesterase inhibitor. Mestinon is a cholinesterase inhibitor.

I don't have the energy right now to do all of the research on this topic. Simply search "fluoride acetylcholine."

It's very hard to find a toothpaste without fluoride in it, and, if you do, it'll probably have equally as toxic substances in it. Tom's brand might have one without fluoride, if I recall correctly.

Simply try brushing without it once, and see if you're mouth is still weak. If it is, it's do to the use of muscles while brushing. If that's the case, you might use that as a clue to your MG becoming worse (to some degree).

Annie

PamelaJune 05-25-2014 02:24 AM

Electronic toothbrush with small head
 
Hi Perrym, I don't have MG but did read your post. I wonder have you thought to try a small headed electric toothbrush? The very small head doesn't overwhelm your mouth and I notice I use far less paste than when using a normal brush. I squeeze a smidge onto the brush and using the electronic one I have found that my mouth produces more saliva than when using a normal brush and I can dribble most of it that out while using the brush over the basin. I rinse with a small glass of water and spit/dribble that way.

Please excuse my ignorance of your condition. I googled toothpastes and noticed some say you should avoid fluoride and others that said not to avoid it. Also noticed one said not to use 3/4 cup of baking soda while others said bi carb soda in small amounts is ok. Arm and Hammer sensitive toothpaste has a small amount of both these ingredients but is gentle on the mouth and does contain less fluoride than other brands. I see one also says you can use Toms of Maine toothpaste but please be aware Toms does contain other ingredients that may be equally as troublesome as fluoride?

Another solution is to chew and eat a mint leaf and then use the electronic toothbrush without any paste at all. The brush movement will stimulate saliva production and the mint which you will have swallowed will freshen your breath and the toothbrush will still leave your mouth feeling clean. Anyway, if spitting is the main problem, the electric toothbrush will stimulate and you can dribble away over the basin, rinse with water and what doesn't get spat out will be ok.

Hope to not offend you by not knowing of your condition much and just a thought to try an electric brush. I hope you can feel as well as you can and enjoy the remainder of your weekend.

Quote:

Originally Posted by perrym (Post 1071282)
In searching the internet I have found some saying that fluoride can exasperate MG. In the morning when I am usually at my best when I brush my teeth I have a hard time spitting. Sometime I can't at all. Though I've never looked for a toothpaste without fluoride I wouldn't think it would be that hard.
Has anyone else experienced this?


perrym 05-26-2014 12:55 AM

No way you can offend me when you are trying to help. Normally I use only a small amount of toothpaste, maybe the size of a pea. I found a children's toothpaste without fluoride but will also try without paste. Thanks everyone.


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