Hand weakness?
 

Is hand weakness common in MG?

Sorry if this is a stupid question. I have only experienced it intermittently until recently and now it is a daily thing. These hands of mine just 100% check out. Cant grip anything :( but it only lasts a while.

Is this part of MG or is another process at play?

Seeing neuro this wk but just curious.

thx....:winky:

My left hand is weak all the time. Anything I try to do with it ends up on the floor. My right hand only gives out when I am very weak.

hope this helps
kathie

How are you in general? How's your breathing?

I always have trouble gripping objects, but it's not impossible to grip at all, as you describe.

The only time I couldn't squeeze a doctors hands was right before my MG crisis. You can become weak so slowly that you can't truly know how weak you are, which is why I asked about how other parts of your body are.

It's a good thing you're seeing your neuro this week. If you get worse, you know where else you should be (ER)! ;)

Annie

I am not confirmed diagnosis, but LEMS is top on the list... but before I crashed 3 years ago, I couldn't hold a spoon, grip the steering wheel, hold my babies... or a crayon/pencil... it was horrible... frustrating... and no one knew what was going on with me... About 4 days after My IVIG loading dose, I picked up a crayon and could color with my kids again.. I cried..

Since I started getting symptoms, I have had problems with grasping things. Intermittent, like everything else.

Last year I used to lift 30 kg boxes, and grasp/hold kilo bags of coffee with one hand whilst pouring the beans carefully into smaller bags.

Now I drop pans, and sometimes even a cup of coffee is too much to hold. I have to remember to always hold the handle, and to use two hands, even with simple things.

I'm having problems with my hands in general. They are weak and I tend to drop things. I don't know if it's the MG or my age. Essential tremors run in my family. I suspect it is the MG. I am a musician and several years ago I started missing notes completely and could not understand why. I think this was the first symptom I had that something was wrong. Since I started Mestinon I don't miss as many but I still get aggravated with the ones I DO miss.

It is a mystery esp bc my hand/arm weakness happens 95% during the night time. It is hard to explain how hand weakness can wake one up but it does. I cant grip anything. It is like a temp paralysis.

I remember in grad sch learning about day time immune function vs night time but I have since been unable to find any literature on that. There must be a major hormonal shift that is responsible for this funny business.

BNY, did they ever test you for myositis? I am retrying the IVIG w solumedrol this time.

Annie, the rest of me feels fine (as in my reg sickness but no other big changes :cool:).

Thx guys
:grouphug:

They have checked CPK/ck, adolase levels on me which are always stone cold normal if not below normal.. my needle EMG is always negative too.. so they don't think it's myositis, they dont' think a muscle biopsy is indicated at this time.. though I personally think I should have one! MY ANA is always elevated, and was most elevated right before I crashed and got IVIG..
I don't know why everyone seems so against muscle biopsies... yes it's a bit more invasive than other things.. but shoot -IVIG isn't exactly not invasive either! We are alwasy on the fence about starting an immunosuppresant with my IVIG... I tried steriods once, but started at 60mg (they didn't advise me to taper up, like I have learned here is important).. so it made things worse.. GOOD LUCK!

Thx Bny! I'm so :) IVIG is working for u. U are my inspiration to retry it. Have a great morning, afternoon, eve :hug: