Dont know what to do anymore
 

Hi All Im new here so plz be easy on me lol

Im a 33 year old male. For years (from18) iv had problems with the left side of my body. It started off like a weak feeling in my left arm. This would come and go sometimes only once a year. In the past 18 months it started happening alot more and each time something new was coming along with it. I am now at the point where i just cant take anymore of this as feel doctors just fob me off and dont want to deal with it.

I was taken into hospital sep 2013 with possable storke. That was very soon ruled out and the stroke doctor said he felt it could be ms due to what was happening and my history so sent me to see a neurologist.

I waited a few weeks to get to see him and from the moment i walked in the door it was clear he had not looked at my history or anything. He would not listen to what i was saying and kept talking over me. He then said he felt it was migraine aura due to seeing colours (which i dont)

I now am at a loss as my health is getting worse very fast and anytime i go to a doctor i feel fob off like they dont want to know or help. I just dont know what way to turn or what to do as im now getting very worried.


Any info or help would be great i just feel so alone in all this.

What I have wrong is :

Heavy feeling to left arm and leg

always tried even if iv had a great sleep.

loss of feeling to left side also pins an needles feeling ( i find it hard to expalin)

dropped foot

problems with left eye

poor breathing

sakes that come and go

muscle spasms

pain


Now in the last few days I can no longer lift my left leg for than 3 inches of the ground


sorry for the long post and if its not wrote well i find it hard to explain what im feeling


just want the doctors to start doing something

Welcome Cresham.:)

oh my goodness, i'm sorry for what you're going thru.
do you live in the United States?
can you get a family member or good friend to go to the dr's with you with the express purpose of being your advocate?

do you have a good primary care physician; pcp? if you don't i'd try to find one and have him/her get you into a good referral for diagnosis (dx). if you have a good pcp, a dr who will listen to you and validate what's happening you will have taken a big step toward good care.

have you had an MRI? any lab tests?
keep in touch with us so we can offer advice and suggestions.

and, welcome to NT.
oh, ps...if you have eye problems, sometimes seeing an opthalmologist can help dx a problem.

Sometimes, drs just s***, especially specialists. They need to be reminded occasionally that THEY work for US, and they are not gods! It is very frustrating, but I encourage you to not give up. Try to find an MS support group in your area and ask for recommendations for a neuro. When I was first dx'd, I found out that there were NO good neuros in my immediate area according to other MSers. I had to go to a city about an hour away.

MS is very hard to dx (diagnose). It mimics so many other illness'. You very well may be doctor shopping and hopping for awhile. The right one is out there it just may take time to find him/her. I say this very reluctantly because I had a horrible experience with it but so many others had a wonderful outcome, but you may want to contact the NMSS and get a name of a neuro from them. Like another poster said, you may have to travel to find a good one, but it very well may be worth the trip!

Hello
Welcome to this forum! :)

I'm very sorry to hear about your health problems. I hope that everything resolves soon.

I had similar sensations in my left arm that use to come and go every few months. Then it came back to the right arm.. I was first told that it might be RA but after many.. many many tests they finalized that it was MS. Now, I hope that MS is not your diagnosis but what I found useful with easing the symptoms in my hands was Dr. Terry Wahls diet. I CANT STRESS ENOUGH HOW THIS DIET HELPED MY LIFE. I'm not getting paid or anything to promote this diet.. it just changed my life sooooo much that I want everyone with a chronic condition to try it.. It's worth to try.. at least for a week.

CUT OFF GLUTTEN, DAIRY and CARBS & have a lot of vegetables, and fresh leafy greens & high quality proteins.

Hope you will feel better soon.

Charie

You can also try contacting the national MS foundation, their website has a number you can call, they were very helpful when I had to find a neuro, they'll let you know the ones in your area that specialize in MS.

They even send out an email listing everyone in your area, with phone numbers and addy's. They don't 'promote' any doctor over another, but can give you any info they have in regards to how many patients they've treated, how long they've specialized in MS and any additional education they've received.

Very patient, very helpful and talking to a real person.

Hey,

I can totally relate to what your going through, as I am in the same boat :( I started with a neurologist and I even went to an optimologist and am waiting for more speacialized dr app. I found that like someone said in an earlier post it helps alot to have somone with you. I found the doctors listened more when it wasnt just me. Also what are your muscoe spasms like? Hope you find someone who listens.

Welcome, we are never hard on anybody! many of us have been in the exact boat you are in right now. Limbo land. I like the idea of an opthamologist that specializes in neurological problems. Also a good heart to heart talk with your family doctor with some one to come and be on your side. if one doctor doesn't work, find another one. MS is a diagnosis that you get by ruling out other things so don't be surprised if they bring up a lot of things and check you out for things you may not feel is right. Come back and let us know how things are going

Hi Cresham1981, and WELCOME!


I agree that you need to see a competent neurologist and a competent ophthalmologist, and I hope you won't have long waits for either of them.

You mentioned that the doctor you saw clearly hadn't looked at your history. This is one of my main gripes about a lot of doctors. Some will pay attention to the history but all too many don't even seem to have glanced at it.

I know they have very little time but a person's history seems important to me.

You might have to do some digging to find out if a doctor is competent but you can easily find out what a doctor's specialties are and whether he/she is board-certified (and not just board-eligible). Sometimes patients' ratings can be helpful too.

Hope you'll let people here know what's going on with you.