New here need info
 

Hi. New here. Have full body peripheral neuropathy possibly due to rare non traumatic crps. I also have mctd and Raynauds autoimmune diseases and lyme with bartonella believed to be chronic. Been thru all paineds anticonvulsants and opiates. Now pain pump with prialt recommended to me. Any positive stories on prialt? All seem negative on this forum. What other pump drugs are effective for neuropathic pain? Bupivicaine sp? Thanks so much. Allwrightann

You might also post on our RSD/CRPS forum, long ago we had a member with Lyme & CRPS as well as TOS. She had to do multiple rounds of heavy abx for the Lyme..
http://neurotalk.psychcentral.com/forum21.html

A difficult combination of dx's...

Do you feel the active Lyme issues has been resolved for the most part?
Have you had long term /multiple antibiotics to make sure that it's no longer active, even though some lingering effects may still hang on..:(


With so many dx's , have you considered a consult with an expert naturopathic dr?

Hi. I did post with crps too. Lyme doc is also alternative. Both she and traditional infectious disease doc think the lyme and bartonella chronic. Meant to say in original post that Bupivicaine was not believed to reach my arms which are the worst. So any help with meds in pain pump for neuropathy that are effective is needed. Just prialt has been brought up so far. And I'd love to hear a positive one - all I've seen were negative. Allwrightann

:Wave-Hello: Welcome AllWrightann.