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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Lost my original post? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/205951-lost-original-post.html)

Allwrightann 06-22-2014 04:06 PM

Lost my original post?
 
Hi Allwrightann here. I posted yesterday but it seems to be gone. I have been DX with non traumatic injury crps. Been bedridden basically for at least a year with peripheral neuropathic pain. Tried all oral Meds anticonvulsant and opiate nothing touches the pain whic continues to get worse. Even did 10 day outpatient ketamine. Looking for any positive stories on prialt - all I see here are negative. I also have mctd Raynauds autoimmune diseases and lyme + bartonella that is believed to be chronic. Have posted with the PN forum too. Sorry if this is a repeat but really need help. Allwrightann

eevo61 06-23-2014 02:07 AM

Quote:

Originally Posted by Allwrightann (Post 1077418)
Hi Allwrightann here. I posted yesterday but it seems to be gone. I have been DX with non traumatic injury crps. Been bedridden basically for at least a year with peripheral neuropathic pain. Tried all oral Meds anticonvulsant and opiate nothing touches the pain whic continues to get worse. Even did 10 day outpatient ketamine. Looking for any positive stories on prialt - all I see here are negative. I also have mctd Raynauds autoimmune diseases and lyme + bartonella that is believed to be chronic. Have posted with the PN forum too. Sorry if this is a repeat but really need help. Allwrightann

Allwrightann,welcome , about rsd,ketamine is actually now,one of the best treatment but also,as your pain management dr for interferential unit,which is pads and cable apply locally and some electricity gets in the affected area, calmare is also a similar treatment but I heard is much better,so far I only tried interferential unit,oral meds,physical therapy,lumbar block and scs but still have flare ups, is hard to control, stress is a big factor to get rsd in the highest level of pain . With all your medical conditions,your pain management dr should be real careful on not to hurt you or improve any other condition to be worse.
Hope soon a treatment will help you, and soon many other members will reach you and give some advice ,so far try to relax and rest as much as you can, rsd takes time to get use to it and cure is not near to happen.
Blessings and gentle hugs for jesika .


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