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-   -   Carnitine Deficiency and polyneuropathy (https://www.neurotalk.org/peripheral-neuropathy/206052-carnitine-deficiency-polyneuropathy.html)

Wolbachc 06-25-2014 02:06 AM

Carnitine Deficiency and polyneuropathy
 
I have been posting here recently and went to a major university for a 2nd opinion with a neurologist. (My neurologist told me he would order physical therapy to help me without even doing a complete evaluation). Anyway, the doctor at the university did a complete evaluation in 1 visit-emg,blood work, skin biopsy and ordered mri neurography. He e-mailed me today telling me my carnitine level was low and to start supplements. I will return for a visit after the mri neurography in about 1-2 weeks. Has anyone here ever had this deficiency and if so, did you improve with taking carnitine? I know things will probably not be that simple but the symptoms I have fit. Muscle pain, weakness, neuropathy etc. Thanks for reading. :grouphug:

v5118lKftfk 06-29-2014 10:27 AM

If you do a quick search you will find that there is loads of stuff on this board about carnitine.

Here is a good one for starters:

http://neurotalk.psychcentral.com/post653568-5.html

Breia Lee 07-02-2014 04:59 PM

I don't think I've ever been tested for my carnitine levels so hats off to your doctor for having the foresight to check it for you. :)

Carnitine is found in alot of products, including: dairy products, such as cheese and milk; red meat, such as beef and lamb; chicken, turkey, fish, leafy green vegetables, cereals, avocados, apples, nuts and bananas. I would suggest eating more of these foods as well as taking a good supplement.

Did he indicate if the deficiency was behind your symptoms?

mrsD 07-02-2014 05:02 PM

Carnitine is often helpful for DNA type damage to mitochondria, by drugs (often Chemo or antibiotics etc) or toxins.

Taken as a supplement in doses higher than that found in food it helps facilitate using fatty acids instead of glucose for energy production.

Wolbachc 07-02-2014 05:05 PM

Quote:

Originally Posted by Breia Lee (Post 1079642)
I don't think I've ever been tested for my carnitine levels so hats off to your doctor for having the foresight to check it for you. :)

Carnitine is found in alot of products, including: dairy products, such as cheese and milk; red meat, such as beef and lamb; chicken, turkey, fish, leafy green vegetables, cereals, avocados, apples, nuts and bananas. I would suggest eating more of these foods as well as taking a good supplement.

Did he indicate if the deficiency was behind your symptoms?

No not yet. I see him next Monday. I did read that symptoms of it are muscle pain, severe fatigue and muscle weakness and polyneuropathy. I'll let you know after I see him.

mrsD 07-02-2014 05:12 PM

Carnitine is over the counter and it is thought that acetyl carnitine is better than l-carnitine.

It is really easy to tolerate with few if any side effects.
GI side effects only occur in the high dosage ranges.

http://www.webmd.com/vitamins-supple...YL-L-CARNITINE

The HIV community has been using acetyl carnitine for over a decade because their antiviral drugs tend to deplete this.

Also the drug Depakote, depletes carnitine over time.


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