NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Traumatic Brain Injury and Post Concussion Syndrome (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/)
-   -   Can we have a support group meeting online here? (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/207205-support-meeting-online.html)

willgardner 07-23-2014 12:06 AM

Can we have a support group meeting online here?
 
For those of us who have difficulty travelling or for those who do not have a support group nearby. Mods? can this be arranged? We can meet in a chat room or something? What do you think?

Or have sponsors online. have someone to talk to when you are feeling down/scared. what does everything think?

anon1028 07-23-2014 12:11 AM

Quote:

Originally Posted by willgardner (Post 1084212)
For those of us who have difficulty travelling or for those who do not have a support group nearby. Mods? can this be arranged? We can meet in a chat room or something? What do you think?

Or have sponsors online. have someone to talk to when you are feeling down/scared. what does everything think?

I vote yes!! for both!! there are some on here that would be great chat moderators or sponsors and it's not me lol!! but I would certainly chat

Hockey 07-23-2014 05:22 AM

Although my hands (and my brain , for that matter) don't really move quickly enough to participate in an online conversation, I think this is a good idea.

The site's existing chat room function could be used. However, with us all in different time zones, coordinating a "meeting" will have its challenges.

Still, while a real time, anytime, go to place, strikes me as problematic, an online get together, at a set time, is feasible.

My suggestion would be that it be held, as much as possible, on a regular schedule. Let's face it, if the time and day are fluid, many of us will forget.

I would also suggest that a referee might be desirable. I think most of us TBI folks can admit that we can be a bit, at times, um, hot headed and subject to bouts of rutted, inflexible thinking. Add that to using a "tone deaf" medium, without any means to convey inflection, emphasis, body language, etc... and the potential for misunderstandings is significant. Just a thought...

Jomar 07-23-2014 01:22 PM

We do have Social groups that can used , it's a bit different from the open forum and different than chat. It might be worth a try..
http://neurotalk.psychcentral.com/group.php

FAQ-
http://neurotalk.psychcentral.com/fa..._social_groups

willgardner 07-23-2014 02:16 PM

I think chat would be better (real time response/the notion of getting together). I was thinking rather than just posting whatever we want, we can have a topic for each chat session like(how to deal with family members who are having a hard time)something like that. As Hockey said if we set a time, and just use the chat function? Also I agree, that we need someone as a referee, the discussion leader, if you will. Mods?

Sitke 07-23-2014 02:21 PM

I would like this too, mind you I might not be able to type fast enough or think fast enough some days but that's okay and I'm up for it.

Good idea to have a set schedule, most will have to write it down somewhere they will definitely see it.

This site helps me so much as I know I'm not alone. :)

Jomar 07-23-2014 02:29 PM

Forum guidelines still apply in chat, but due to scheduling/timezones it would be difficult to have a dedicated moderator available for chats.

You can PM admin or mods if needed, but generally if a chat gets out of control best to just leave the chat, then they will have no one to chat with til they cool down..

willgardner 07-23-2014 02:58 PM

Alright, so we have 4 people(including myself) interested in a chat meet. Please provide a time window that works for you(in EST)What does everyone think of having a set topic, so that the conversation is somewhat structured. We can take turns setting the topic? Has anyone been to a support group? how do they run these things?

underwater 07-23-2014 03:13 PM

Keep me in the loop please. I may join. Another option is voiceover internet like skype. Requires more trust...so maybe down the road. But easier for me to listen/talk than type/read

anon1028 07-23-2014 03:38 PM

in some support groupse they let one person at a time speak about what's on their mind and then others respond. But I'm down for whatever set up. As far as the people who type slowly. Who better to understand then this group and we will be a very patient. I am thankful to be on this board as no matter how tough times. I know im not alone


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