Hallucinations: Help
 

Hi,
My wife has had PD now for over 12 years. She started having "visions with insight" years ago but now she is having "psychotic" hallucinations where she sees woman around me, a "thing" that intends to harm her and an electric or magnetic floor that controls her and the dog. She can become very angry at me to the point where she hits me or throws furniture around. I am not sure if she has Parkinson's dementia or dementia caused by the drugs she takes.
Her neurologist seems to only tweak her meds. Wife is on about 800mg of stalevo a day with a 25/100 ER at bedtime. Neuro has tried to get her to take seriquell (for psychosis) at bed time but if she takes the full 25mg she is helpless and sometimes wets her bed. She has also stopped using a 4mg Neupro patch over the past 10 days but with no good effect. Stalevo can cause psychosis but sinemet may be almost as bad. Caring for my wife is becoming very difficult now. We are having a home health aide start this week but the aide may not workout.
Has anyone seen psychological improvement after going back to sinemet after a few years on stalevo? I feel the only treatment that could "save" my wife is a cell transplant of some sort but time is quickly running out for her. If anyone has any ideas that would help make her demons go away, I would greatly appreciate it.
Thank you, John

My dad tried Seroquel for hallucinations but it made things worse in his case.

He was on sinemet, mirepex for PD.
then tried the seroquel - doc said stop the seroquel since it was not helping him

next the mirepex was stopped and he had loss of movement & energy

another call to doc and decided to up the sinemet to see how that works for him.


But everyone is different and what works for one may not be the fix for another, sometimes you have to try a few things and sort it out.

It doesn't hurt to meet with another PD doc to get another assessment on the treatment plan..

John,
Others may be able to assist you regarding your question on Seroquel.
About Stalevo for me anyway I'm not a big fan of it .
My MDS prescribed it in a similar fashion as a daytime anti parkinson drug and Sinemet CR at bedtime.
i found the Stalevo taken dose after dose gave me a kind of rush or inner restlessness.
Perhaps try alternating between a dose of stalevo with a dose of Sinemet?
She may need more Sinemet CR in the evening and if she wakes too.
Its a very uncomfortable and distressing feeling being unable to snuggle up and get cozy and fall asleep which will happen when shes off.
Let neurologist know of the changes if you make them and remember the changes to her be they improved or worsened usually happen gradually.