out of ideas
 

emg showed nerve problems into both arms and legs. I have pain and pressure from my lower spine into my neck and head and pressure all over. this was from a mild thalamic stroke. how is that mild!!!! the pain never stops and my whole spine and head shake internally in the morning with burning. this is 7 years!!! I'm not working I'm home.

and no answers or treatment. and I get heart palpitations that I feel in my head before they happen. I know that sounds crazy but I get a zap in head then palpitation. they just did negative mri of brain. at 360 pounds, with this pain keeping me in....I don't know what to do. my mother is 82 and she picks up my meds!!!! I'm ranting sorry

We have a Stroke sub forum-
http://neurotalk.psychcentral.com/forum23.html

Hey,

I don't think any kind of stroke should be called mild, has anything been done for the nerve problems in your arms and legs?

You're not ranting at all!

My EMG showed pinched nerve and that's why my left arm/fingers hurt. :grouphug::grouphug:

Mark...
 

Has anyone (doctors) mentioned/questioned Dejerine–Roussy syndrome (a.k.a. thalamic pain syndrome) or the possibility of silent migraine and or food sensitivities?

Doc

you're a smart dude, bro! One doctor diagnosed it as that and he pursued treatment vigorously. HE threw everything at it. oxy, roxy, gabapentin, lyrica, Xanax, flexeril. not much worked out that great.

Then he moved to his own office from the clinic and being lazy me I stayed at the close clinic instead of following him. Bad move on my part. that was 7 years ago.

Do you have any suggestions for the pain that you may have come across.

And if you get a chance, can you peek at my question in the addiction and recovery room lol. It's kind of a continuation from this mess.

you're pretty sharp. thanks for the help.

Rhetorical question (to ask yourself—I don't need an answer)... Can you look that doctor up and go with him now? If not, can you contact him for a referral/suggestion who you can see now of similar mindset?

That's why I asked about silent migraine & food sensitivities. I suffered from chronic migraines (definition: more than 15 days/month) for several years; identifying & avoiding food triggers is one of the things that helped me reduce the frequency from chronic to something less than chronic (but still a major dibilitating PITA).

I've become even more keenly aware of the insidious nature of triggers (and silent migraine) with an ordeal my DW has been going through.

Silent migraine is far more prevalent than previously thought, and often missed by doctors looking at/for something else—or following the wrong clues—leading to misdiagnosis. Patients suffer for years, while they and their doctors never suspect migraine-related events/symptoms. Symptoms can be wide-ranging in scope, and present as all kinds of other conditions.

Not only is my wife's stenosis pain lessened, but her fibro, arthritis, & other pain symptoms are attenuated as well.

I've pretty much identified my own triggers after years of trial & error, but I'm taking a second look at some I thought were ok. I know that when I eat something fairly innocuous that it can have me sick for days after, and the pain.... don't get me started.

Not only can/do these things (triggers & silent migraine syndromes) get misdiagnosed as something else, they are often concomitant with other pain syndromes (the sneeky barstads), making them all the harder to suspect & identify.

After dealing with triggers first for IBS, then chronic headaches/migraines, PN, arthritis, and stenosis/spine issues, my thinking is running that they contribute to any/every kind of chronic pain issue. Same with silent migraine.

Another rhetorical question—What if what presents/seems like post-thalamic stroke/Dejerine–Roussy syndrome is actually silent migraine, whether or not related to triggers? What if it's both—post-stroke and silent migraine—(or something like that) which could/might explain some of the difficulty in treatment? My headaches/migraines (I get two distinct types in a complex) are/can be difficult to treat because each type requires different intervention, and each type can present/disguise itself as the other. I can also get both types concomitantly, which is REALLY fun.... NOT!!! :icon_cry: :hissyfit: :mad:

I did, and that too makes me wonder :Ponder: if there isn't more than one thing going on that's fooling everyone—a "misdirection of symptoms"(?) :Dunno:

Doc

thanks for the reply doc. I will mention what you told me to my neurologist when I see him on Monday. I have so many symptoms I've lost count lol. i'll never understand how tiny little pills can do so much damage to a body. BUT if it is migraines then there could be relief. thanks again

Go ahead and ask/mention, but I wouldn't expect most neuros to know from shinola about migraines, much less silent migraine—though most claim/honestly think they know. I bounced around between about a half dozen of them before I (acidentally) found the local "headache guy"—board-certified in Headache Medicine. Likewise was the ENT my wife saw.

Doc

Hi Mark,
I think Doc Smiths idea about investigating migraines is a good one. I had the classic migraines that started 25 yrs ago due to Lyme Disease but 3-6 months ago got pain in my neck and head and light and sound sensitivity that I DID not equate with migraines because they were so different. I did a few weeks of Imitrex and some PT(have herniated cervical disc and some calcification s) and it has helped quite a bit.

I know I probably sound like a broken record but some strains of Lyme Disease can really effect your heart and nervous system in all sorts of weird ways. Have you ever investigated that? If you want info I will be happy to recommend some. I was dx'ed 23 yrs ago and feel like I have done every treatment in the book.

My best to you,
Diandra

hi mark,
look at my post from today titled "Dr. Forrest Tennant Pain Information".
At the end of his video and in his 2014 update he talks about how depleted our hormones get from constant pain and how people who DON'T feel relief from their pain medications can be helped immensely from taking the hormones we are missing. He said this can be evaluated with a simple Blood test, one vial. He explains it much better than I ever could. What is amazing is he said it can be as effective as Lyrica or Neurontin for neuropathy. He also said people can lower their pain meds or get off them completely when their hormones are balanced.
This was new and very hopeful info for me. I am 10 yrs into being treated for chronic pain so whenever I learn of something new, it is exciting and encouraging.

I had an appt with my pain mgnt doc today who knows Dr Tennant and will be seeing him at a conference next week. I showed him this info on hormones and pain control and he said he would talk to Dr. Tennant about it. He said he was not convinced but would investigate.

It is understandable you are so frustrated and feel at your wits end. How could you not with what you have endured. Mark, I too felt I could not go on before I went to this pain mgmt doc 10 yrs ago. He completely turned my life around.
I tell him often how grateful I am and if it weren't for him, I would be a sad statistic.

My doc also mentioned a new long acting drug but the name escapes me right now. I will find out if you are interested. The only negative was that you had get off all other drugs and only be on that one drug...I was not prepared to do that so kinda stopped listening.

Glad you joined this forum. Pain, illness, being stuck inside is so isolating and this is a place where folks understand that.
Take care, Diandra