NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   New Member Introductions (https://www.neurotalk.org/new-member-introductions/)
-   -   I have crps, any advice? (https://www.neurotalk.org/new-member-introductions/208883-crps-advice.html)

Jodu10 09-02-2014 12:13 AM

I have crps, any advice?
 
I crushed my foot on 3/31/14, I was in three different cast, then three different boots. I currently have very little feeling in my entire left foot. About two weeks ago( August 15th or so) I was diagnosed with CRPS. At 1st my bone and joint doctor had no clue what I had, then he sent me to a neurologist , he diagnosed me then immediately sent me to a pain management doctor. They have me scheduled for a nerve conduction test then a pain block injection into the sympathetic nerve which runs from my back to my left foot . I'm scared of both tests, and was wondering if any have had this done. Also I left out that I cannot walk, I cannot put but 20pounds of pressure on my foot before I pass out. I'm currently on gabapentin , ocycoten , amatryptoline and meloxican , any help would be great, and I'm also loosing my mind over this. Thanks for listening

Lara 09-02-2014 01:46 AM

Hello,

Welcome to the NeuroTalk Support Groups.

I'm sorry that you're in so much pain.

Try posting over on the
Reflex Sympathetic Dystrophy (RSD and CRPS)

I'm sure the members there will be able to give you information and support.

take care

Kitt 09-02-2014 08:41 AM

Welcome Jodu10. :Wave-Hello:

Darlene 09-03-2014 12:07 AM

Nice to meet you!!
 

Jodu10,

:Wave-Hello:It is great to have youcome and be with us. There are a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug:

Pixie Girl 09-06-2014 12:40 PM

Quote:

Originally Posted by Jodu10 (Post 1093536)
I crushed my foot on 3/31/14, I was in three different cast, then three different boots. I currently have very little feeling in my entire left foot. About two weeks ago( August 15th or so) I was diagnosed with CRPS. At 1st my bone and joint doctor had no clue what I had, then he sent me to a neurologist , he diagnosed me then immediately sent me to a pain management doctor. They have me scheduled for a nerve conduction test then a pain block injection into the sympathetic nerve which runs from my back to my left foot . I'm scared of both tests, and was wondering if any have had this done. Also I left out that I cannot walk, I cannot put but 20pounds of pressure on my foot before I pass out. I'm currently on gabapentin , ocycoten , amatryptoline and meloxican , any help would be great, and I'm also loosing my mind over this. Thanks for listening

Jodu -

I am so sorry to hear of your pain - I am in a similar situation with my ankle and on many of the same medications. Gabopentine, Effexor (for depression - it helps), Percocet (though they are taking that away from me, which I cannot for the life of me understand since it is the only medication so far that helps with the pain) and a sleep aid since the pain keeps me up at night. I don't think I have experienced REM sleep in a week!

So - we will go through this together, yes? We can share what helps (soft, squishy socks - sometimes doubled up on the affected foot) - soft pillows under the calf so nothing touches my foot, not even the ruffles on a couch pillow - insane, right?) - elevating the foot always helps me! Does that help you?

Anyway - I am going through spinal injections right now - third one is next week. Not really sure it is helping all that much - I think my foot doesn't change color so much now which is good (though it still does change color). The doctor said it might take many injections - so we will see. Do not be scared of the injection - tell the doctor (INSIST) that you want to be sedated. The can give you sedation and then also a medication so that you don't remember the procedure. I can honestly say that I have had this done twice, I remember nothing, and other than mild pain at the injection site, no serious side effects. So stay strong, don't be afraid, and please update me to let me know if it has helped you!

I will keep my fingers crossed for you and look forward to hearing back!

Pix


All times are GMT -5. The time now is 06:00 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.