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-   -   Help! Starting oral prednisone 1000mg (https://www.neurotalk.org/multiple-sclerosis/209280-help-starting-oral-prednisone-1000mg.html)

Angela1970 09-10-2014 09:13 AM

Help! Starting oral prednisone 1000mg
 
This is my first time posting in the forum. I am desperately seeking advice. I am beginning the 1000mg prednisone regime. Dose is 500mg x2 daily. I am looking for advice as to when is the best time to take to avoid adverse effects. What to expect. I am very nervous as I have read some of the posts. Please all tips and advice are greatly appreciated. I have MS and am in the middle if a flare, specificAlly diagnosed with optic neuritis. I have just started a new job and ideally would like to begin the regime Friday am in order to complete the treatment over the weekend. Advice and tips would be greatly appreciated. Thanks so much.

ginnie 09-10-2014 10:28 AM

Hi Angela
 
My cousin has MS. I know just a little bit about it. Were any other treatments for your flare up talked about? Any other options at all?Can the flare go down with no treatment? Have you gotten other opinions from another MS doctor? I know you most likely like your current physician, but I think I would seek the other opinion before the steroids. Can they do it at a much lower and slower dose?
I hate to think of you on that much med. That particular medication is so hard on a person. I took enough of it to know, and I wouldn't want my friend to have to endure it.
I will be thinking about you, and hoping that whatever option you wind up with helps you the most. ginnie:grouphug:

Kitty 09-10-2014 11:14 AM

Hi Angela and welcome to NeuroTalk.

Is this your first bout of ON? Have you ever done IV Solumedrol for MS flares? I'm just wondering why your doctor chose the pill form. Is your doctor a Neurologist or just your PCP?

Sorry for all the questions but we need to know a little more before offering suggestions or advice.

I have had ON a couple of times and have just rode it out without any medication. But I don't work so that is a big reason I just waited it out.

Are you taking any of the DMD's?

SallyC 09-10-2014 11:20 AM

Hi Angela and welcome to NeuroTalk,:hug:

So sorry for your MS diagnosis. I hope that the steroids help to stop your
flare and you return to normal soon. Never heard of 500mg twice a day,
And I suggest a predizone taper at the end of your therapy.

Is this IV solumedrol? It's usually the whole 1000mg given slowly once
a day for 3 to 5 days. Are you doing this in the Hospital or at home?

Drink lots of water and have a banana(potassium) and maybe a mint for
the yucky taste in your mouth. My Doc gave me a little Valium to ease
the side effects of the steroids.

Don't use steroids too often, only if badly needed, as it is hard on your
body.

Stay with us and let us know how you're doing.:grouphug:

Angela1970 09-10-2014 11:32 AM

Quote:

Originally Posted by Kitty (Post 1095504)
Hi Angela and welcome to NeuroTalk.

Is this your first bout of ON? Have you ever done IV Solumedrol for MS flares? I'm just wondering why your doctor chose the pill form. Is your doctor a Neurologist or just your PCP?

Sorry for all the questions but we need to know a little more before offering suggestions or advice.

I have had ON a couple of times and have just rode it out without any medication. But I don't work so that is a big reason I just waited it out.

Are you taking any of the DMD's?

I was last on IV Solumedrol 3 years ago, but for this flare I lost vision and my Neuro Opthemologist prescribed the oral regime. I started a new job today and do not want to start until Friday. I am very concerned about effects.

Angela1970 09-10-2014 12:16 PM

Prednisone advice....
 
Any advice that you have would be so greatly appreciate...please tell me what to expect when taking the 1000mg per day dose and possible ways to avoid the side effect.

Snoopy 09-10-2014 12:16 PM

Hello Angela and welcome to NeuroTalk :)

Quote:

I am looking for advice as to when is the best time to take to avoid adverse effects.
Unfortunately, there is no best time to avoid the side effects of steroids :(

Quote:

I was last on IV Solumedrol 3 years ago
Your past experience with steroids could be similar to what you may or may not experience.

Quote:

I started a new job today and do not want to start until Friday.
Sadly, the effects of steroids can stay in your system for a while so even if you start them Friday you could possibly experience the side effects into your work week :(

Take care and best wishes.

Jomar 09-10-2014 12:38 PM

Is this just a short term dose? like a few days or so?

Angela1970 09-10-2014 12:41 PM

Quote:

Originally Posted by Jo*mar (Post 1095519)
Is this just a short term dose? like a few days or so?

Yes a 3 day course of 1000mg per day then 80mg per day for 7 days

Kitty 09-10-2014 12:59 PM

Was this prescribed by a neurologist that is familiar with your MS?


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