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-   -   MRI diffuse white matter disease (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/209421-mri-diffuse-white-matter-disease.html)

PCSJourney42 09-13-2014 02:48 PM

MRI diffuse white matter disease
 
Has anyone had this reported on your MRI since your concussion? I ask this, because 6 days after my accident I was admitted into the hospital, the MRI showed white matter disease diffusely which on the most part indicates Alzheimers. In my research, I found that Neurologist specializing in TBI that this is also indicative of damage from the accident.

Lara 09-13-2014 03:42 PM

Most probably damage rather than a disease (like Alzheimer's).
I had saved an interesting article in my bookmarks about MRI and white matter damage when I was researching my vertigo/dizziness.

http://www.sciencedaily.com/releases...0415084520.htm
MRI pinpoints region of brain injury in some concussion patients
Date:April 15, 2014
Source:Radiological Society of North America

Look in PubMed for the author Alhilali
e.g.
http://www.ncbi.nlm.nih.gov/pubmed/23781117
Radiology. 2013 Oct;269(1):249-57. doi: 10.1148/radiol.13122343. Epub 2013 Jun 18.
Symptomatic white matter changes in mild traumatic brain injury resemble pathologic features of early Alzheimer dementia.
Fakhran S1, Yaeger K, Alhilali L.

PCSJourney42 09-13-2014 03:49 PM

This makes so much sense! I am too young for alzheimers...the neurologist I seen and the neurosurgeon said that this is odd. I am seeing the wrong doctor. I need to seek out one of the specialist. But here is my question, does this mean everything is permanent?

PCSJourney42 09-13-2014 03:52 PM

Lara you are a God sent. This doctor is in my area :) I am going to make an appointment with her on Monday

Lara 09-13-2014 03:55 PM

Are you kidding? In your area?

_________

Not permanent. Not to my understanding.

It also says in that first article that cerebellar injury could mean longer recovery time, but it says "recovery". Author also said that everyone is different. Every case is not the same.

I've had residual vertigo for almost 9 years. I was never sent for vestibular therapy. I wasn't sent for anything. I thought it was in my ears, and then all my foggy brain and memory issues and other things got better and I was left with this vertigo which was for some years incapacitating totally. Now I'm able to go places and feel less afraid of another fall or dying attempting to walk across the street because of my vertigo. Sounds lame I guess, but it's been horrible. Now I see the light at the end of the tunnel and I wonder how much faster I would have recovered if I had proper care.

anyway...

PCSJourney42 09-13-2014 04:09 PM

Yes, how divine is that. I see my neurosurgeon and pain management doctor through the same facility.

PCSJourney42 09-13-2014 04:12 PM

Lara...if one thing I have learned from this is that is unpredictable. Nothing is lame in regards to this, it is misunderstood, misdirected....and a struggle.

EsthersDoll 09-13-2014 05:07 PM

awsome thread - please keep us posted - especially if you see this specialist!

PCSJourney42 09-13-2014 05:15 PM

Quote:

Originally Posted by EsthersDoll (Post 1096232)
awsome thread - please keep us posted - especially if you see this specialist!

I most certainly will... And thank you for the pituitary discussion. Although, I had testing done by my PCP....I am now in question as to whether seeing an endocrinologist is not beneficial, just to have the clarity.

EsthersDoll 09-13-2014 05:21 PM

Quote:

I most certainly will... And thank you for the pituitary discussion. Although, I had testing done by my PCP....I am now in question as to whether seeing an endocrinologist is not beneficial, just to have the clarity.
Sure. There are several different hormones that can be deficient, not just the thyroid and the levels that indicate a deficiency are different after a brain injury and most PCP's don't know that. Unfortunately, most endos don't know that either... if you do go to one, go to one with experience with this sort of thing. If you have any questions, feel free to reply or PM.


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