coming back to neurotalk
 

hi everyone. I have been away from the site for a while. I'm sorry :(
I was trying to be so optimistic about the rsd and hoping overall I was maybe improving, but the flare ups as of late have destroyed my optimism. I don't have anyone in my life that can really help me deal with this or help me provide for myself and take care of myself, so things are extra scary and difficult. if I lose my job, which I fear I might, I have no idea how I'll pay a single bill let alone take care of myself. I'm so scared and so done with being sick, I haveother health problems too, which I'm finding many of you do too and I pray we canall heal. I don't understand rsd anymore. drs tell me what it does, that it can come after an injury, but they can't tell me exactly WHY or how to FIX it, not just treat it. I can't live the rest of life like this and on my own trying todeal with it. is there anyone who provides for themselves, suffers greatly, and has some assemblanceof peace and sustainability? anyone who is better/healed? I don't have a spouse or anyone at home to help. I'm fending for myself and this pain and sickness is tearing my life apart. :'(

Hi Winter,
I am so sorry for what you are going through with this monster. Also sorry to inform you that there's no known cure for our disease either.
I don't know your age but you might check into the possibility of getting some sort of SSI help.
I don't really don't have answers you need but I just chimed in to voice my sorrow...

thank you for your empathy and compassion Russ. it is appreciated. hopefully I can keep the monster away better! I hope you are feeling well

Being together in this fight means a lot!!!!
 

Winter,we all understand this monster keep us away from our normal routines ,keep it up and don't give up, is hard but nit impossible ,we all take few days off to recharge our batteries and better mood. :D
Rsd changes are really challenging but with support we all will make it,don't be afraid and let us know when bad days hit you,that's why we are here to vent ,help and support each other's ,so speak up and cry out if you feel like to .:grouphug:
Last few days I was and still experience hell if hell is real burning body with headaches added a mice combo for me,but I decide to get up and kicked the pain of rsd and all that comes with their butt,I'm tired and seriously need a break,suck feeling this way but we just need to get up as many times as we can.
Loving hugs to all,Jesika .:grouphug: