NeuroTalk Support Groups - What the heck is this?

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What the heck is this?

All my seizures I've had have been the same, but this
time, this is the 3rd time I've experienced this, and I
don't know if this is a seizure or what, but it's happened
just before it (the seizure) starts. Never had this before.

I've been trying to find this everywhere but maybe I'm
looking at all the wrong places. While I do get the normal
same old auras, but, this time, I'm experiencing this weird
thing ... like my body is separating itself. Am I making
sense here? I don't know how to explain it, that's the
best thing I can describe it. I usually get the funny taste,
then the smell, then the light. And if it's going to be a
bad one, I'll get a lot of repetition of light in split second
over a period of time with this rising inside of me, but this
time, this is when I get this separation - like my body
wants to "leave me"?

:confused: :confused:

My son and friends say my eyes get glazed up, and go into
typical CP mode, but all I can remember is what happen
before it all starts and then the massive headache after
that and how the light hurts my eyes, and having to sleep
it all off - which takes hours, and all the usual junk that
goes along with it ...

But has anyone ever experienced that separation? That's
got to be the most strangest and weirdest thing I've ever
experienced, and that's the 3rd time I've experienced it,
and is there a name for that? Because right after that happens
that's when I seize!

:(

:hug: :hug: Sharon :hug: :hug:

This is similar to my partial manifestation. They will rarely (20 times in my 40 1/2 years) lead to a grand mal, but if they get as far as the vertigo (that "separation" you mentioned), they're likely gonna be grand mal very shortly (seconds from it).

LIZARD :)

Hi Southie,
I agree with Lizard it's all part of a partial. If I may ask have you ever gotten the feeling right before a sz. that you are in your house but yet you look around and nothing looks familar to you? This happens to me every now and then and it's called: "De javu" (sp?).
Has the weather been rainy down your way? The reason why I ask is because sometimes a low pressure can lead to sz. for some people and I know Tropical storm Barry was down in your area. Here's wishing you well and May God Bless You!

Sue

Tropical Storm Barry WAS here ...

He's all gone now ... I do suffer from Intractable
Complex Partial Epilepsy with loss of consciousness
with Secondary Generalization. But I was fine, but
now that you guys mentioned it, I had a problem
BEFORE he came along and now AFTER he left ...

And I did suffer a brief Tonic Clonic ... but I did
sustain CP's before he came and after he left but
nothing while he was here ...

Hmmmm........

I just realized my first OP didn't come across
right ... forgive me. My auras normally come as
posted.

The separation issue was "new" to me.

Sorry about that folks.

Hi Sharon,
From now on try and keep track if your sz. happen when a low pressure is near. This will help your neuro out a lot. I did a little research and found what you are discribing re: seperation is a form of an aura sz. to get the details check out this website. http://www.neuropat.dote.hu/neurology.htm click on epilepsy when the main page comes up and then go down to temporal lobe seizures and check out that site. It has the info. about the seperation you felt. Here's wishing you well and May God Bless You!

Sue

I went...
I read...
Clicked and read some more ...
on the Intractable Surgeries...
and saw the Author...
And He's my Neuro / Epi!
Dr. Erasmo Passaro
But he already knows all
about me ~ I think he knows
more about me than I do! LOL!

:)

I will be having to call the office
anyway, I had forgotten to pick
up the AED prescription *blush*
on the last visit and I'm gonna
be out Wednesday ...

Thanks Sue! (for some reason I
want to call you Suzy-Q)

Hi Sharon,
I hope I was of some help. I find it interesting that it was your epi that wrote the info. Feel free to call me Suzy Q if you want it doesn't bother me at all. The reason why I have the nickname Porkette is because I collect pigs (not real ones). If I still had every single pig I've collected over the yrs. I would have 567 pigs sitting in my house. Everything to a pig clock to pig soap dispensers and pig cookie jars. Just remember if anyone every calls you a "Pig" that stands for Pretty Intellegent Girl/Guy. Take care and God Bless You!

Sue

Quote:

Originally Posted by Porkette (Post 108736)

Hi Sharon,
If I still had every single pig I've collected over the yrs. I would have 567 pigs sitting in my house.
Sue

Impossible!
These here will fly away!
:eek:
hee hee hee hee
:hug:

http://i178.photobucket.com/albums/w...flyingpigs.gif

I'm called "Southie" because when in grade school
(aka Elementary), the teacher was stuck with 7
Sharon's in her class (not all the same spellings
however) ... and I was the only "southern, south-
paw, native", and sort-of-got-stuck. And my little
sister's name is Susan and we call her "Sue" and I
called her a lot of things - LOL!

I've had that a few times and was told it was something in association with my more unfriendly seizures (parietal/occipital lobe). There's never much information online to cover this type as it's fairly rare, however, I still believe most doctors don't investigate enough complaints of these symptoms or the number would rise greatly. :) I really don't fancy them saying it's a hallucination, though. Hehe.

I'll paste some information below and link the source.

Quote:

Seizures with visual symptomatology

Seizures from the occipital lobes and the parieto-occipital junction are characterised by visual phenomena, but visual auras may occur in epilepsy affecting any part of the visual pathways. Elementary visual hallucinations are most common, especially crude sensations of light or colours, which may take various shapes, be continuous, steady or moving, or be interrupted flashes of light. Visual loss, either total or partial, may also occur and is especially common in children. Transient amaurosis as an ictal phenomenon lasts seconds to minutes, but visual loss may also occur as a post-ictal deficit. Amaurosis is usually bilateral and may be a blackout or whiteout.

Formed visual hallucinations are experienced fairly often in epilepsy. Pictures of people, animals or scenes may be perceived, either static or moving. One subtype is epileptic autoscopia, where the subjects see mirror images of themselves, sometimes in long-lived situations. Formed hallucinations are usually brief, and may be associated with slow head and eye turning, with the gaze towards the direction of the moving images perceived. They may be associated with various types of visual illusions. Usually, patients are aware of the unreality of the experience. In comparison with migraine, that is usually associated with sharp lines and fortification spectra, the visual hallucinations of occipital seizures commonly comprise coloured blobs of light.

Visual illusions also occur as a seizure phenomenon, and visuo-spatial perceptions and topographical sense have been located to the non-dominant parietal lobe. The simplest types mainly involve visual illusion of spatial interpretation, illumination or colouring of vision, or movement in space. Perceived objects may appear diminished or enlarged (micro- or macropsia), altered in shape, squeezed or compressed from above, downwards or sideways, vertical and horizontal components may be oblique and lines wavy. Lines may be defective or fragmented, stationary objects seen as moving, or motion appears too slow or too fast. In some cases, such experiences may be difficult to distinguish from the characteristic illusion of movement in vertigo. More complex forms include inappropriate orientation of objects in space, like teleopsia, where objects appear both small and at a distance, or enhanced stereoscopic vision, where near subjects seem very close and more distant objects located very far away. Palinopsia, or visual perseveration, in which visual images recur or persist after removal of the stimuli, may also occur as a seizure.

Here is the link if you'd like to read up some more on it. Not to diagnose you, but hopefully it will give you some additional insight on how weird our seizures can really be. I always reflect on this link and think of how fortunate I am to not experience the sensation of losing limbs. My Epi told me she'd heard of only one case and the patient had to be hospitalized because her seizures were so painful and traumatic she'd ended up having to be under supervised care due to being suicidal. :(