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baba222 10-19-2014 12:30 PM

Those with sensory small fiber
 
How did you get someone to listen and not think you are having "anxiety" instead.
Any suggestions are greatly appreciated.
TIA

Jon_sparky 10-20-2014 12:58 AM

Quote:

Originally Posted by baba222 (Post 1104017)
How did you get someone to listen and not think you are having "anxiety" instead.
Any suggestions are greatly appreciated.
TIA

It is important to find the right neurologist, most are now psychiatrist/neurologists. When I first started have burning pain in my feet, the doctor thought it was in my head, now they have tests that can be done to prove that it exists. Try to find a Neurologist at does punch biopsies.
Good luck!

Electron 10-20-2014 10:27 AM

Quote:

Originally Posted by baba222 (Post 1104017)
How did you get someone to listen and not think you are having "anxiety" instead.
Any suggestions are greatly appreciated.
TIA

It is absolutely ridiculous for a doctor to tell someone who feels pain that it is all in his/her head. Of course you have anxiety if you are in chronic pain. Kick him in the shin and ask him if it feels like that is all in his head. Find a different doctor.
Ron

Marie33 10-20-2014 03:57 PM

Quote:

Originally Posted by baba222 (Post 1104017)
How did you get someone to listen and not think you are having "anxiety" instead.
Any suggestions are greatly appreciated.
TIA

Hi babba,
You need to find a good Neuromuscular Neurologist. My SFN also started with burning feet and tingling in my lower calves. My neurologist at the time (3 yrs ago) insisted it was anxiety! I was so angry and frustrated with him because I knew it was not anxiety! (I wish it was only anxiety)! :mad: Finally after a year of tests (emg/ncs, mri's-brain, spine, bldwork, etc) and a waste of time going back and forth to my Doctor/Neurologist that thought "it was all in my head" , the Neurologist decided to do a Punch Skin Biopsy. That test is what confirmed I had SFN. The test result read: Consistent with small fiber neuropathy. Nothing else, no swelling, or other "problems". Mine is Idiopathic, 3 yrs later , still no known cause!
They wont "listen"to you. You have to insist and tell your Neurologist you want a skin biopsy. Do you have symptoms of small fiber neuropathy? Have you had any tests yet? I hope this helps...


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