New member
 

First of all, if I'm posting this in the wrong area, I hope someone will tell me. I am a 67 year old woman, married to an incredibly supportive husband.i have three gown children, 2 daughters and 1 son, and have 5 grandchildren. I had a 5 level fusion (lumbar) in March of this year. In April I had an emergency surgery for seroma at L5/S1 area. I was diagnosed three months later with CRPS/RSD. I also have lupus which as been well managed; also, fibromyalgia.

I recently went through a trial of the neuro stimulator, with some slight improvement. I elected not to have the permanent stim implant. Just didn't think I had good enough results to warrant another surgery. I just started ketamine torches three days ago. Other than some weird sensations for 20-30 minutes following the lozenge dissolving, I haven't been able to tell any improvement. I'm trying to find out if others have experienced improvement using ketamine torches. I have appt in two weeks to talk about trial intrathecal pump and ketamine infusions. I am going nuts now that I'm spending so many hours alone; husband, who closed his podiatric practice to care for me following surgery, has just gone back to work

Thank you, anyone who responds to this.

Welcome NanaP25. :Wave-Hello:

Hi NanaP25. I'm a 19 yr old college student, physics major. You used a lot of terms I don't understand, but I do know about Lupus. My mother has that. Your other issues are too complicated for me, but I want to wish you well. I also saw that you spend "many hours alone" and I'm sorry for that. I kinda understand that; I live off-campus in a tiny apartment with my dog. (My family's back in Ireland.) He's probly my best friend. Sounds dumb, I know. Can you talk to your kids or husband about your feelings? I call my mom every couple days and miss her. Maybe your children can help or a friend. I'm sorry I don't know anything about your medical condition but I'm sure you matter to a lot of people. I hope you get some answers to your questions. Best wishes to you, you sound like a very good person. Take care, Darius

Thank you for caring
 

Darius, thanks so much for taking time out to write your note. I'm glad to hear you are staying in close contact with your mom. I know it means a lot to her. I sounded kind of pathetic, didn't I? This being alone so many hours a day is just new to be. It does give me the opportunity to paint, which I love, but it also gives me time to fret. My husband and kids are great. My kids live out of town but are great about calling. I talk to one of them every day. My husband and I worked side by side for 24 years until my recent back surgery. He closed his practice to take care of me, so now that he's finally working Again, I miss Hm a lot. Your reply forced me to look at my situation again. I'm blessed in so many ways. You sound like a very caring person, and a wonderful son. You take care and I'll say a prayer for your mom.
NanaP

Welcome DariusMcSean. :Wave-Hello:

New memberWith Autoimmune Neuropathy and Pudendal Neuro
 

Hi Every one , I have been lurking and jumped in for one person who was having Pudendal nerve issues. Sometimes i just get so frustrated with all this i just want to scream .I'm very grateful you are here I'm still learning about my Neuropathy and all the swell symptoms that come with it .The diagnosis so far is idiopathic Neuropathy although I'm leaning on pre diabetic now .This has been going on for a while
So Far i have been able to abstain from major pain narcotics i have been given scripts just not filled them do not know how much longer though .I have been reaching way out of the box in my protocols. I have tried tapping release ,chiropractic, acupuncture, Medical intuitive s and so far the only one that has helped has been the acupuncture. Unfortunately that doctor crossed over I have looked into medical Cannabis which i tried when i was a kid and would be willing to try juicing it only for the healing not the euphoria . I have given up on further diagnosis . For one the Specialist MDs really have nothing more to add except extra zero's on my bill and my insurance, well lets not even go there. I have been able to maintain my self with better diet, supplements, and and much walking as i can possibly stand the pain in my feet and Genitalia is becoming debilitating . Meditation is one of my key releases i try and do yoga but it is really hitting my Pudendal Nerve and pelvic floor so hard so i do not know if i can keep it up. And of course keeping a positive attitude and starting every day with positive affirmations even before i get out of bed. I just want to say Hi and try and learn as much as i can for my health . I will jump in if i think i can help anyone Thank You for being here Teddie:hug:

Hello & Welcome!!