NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)
-   -   L-Carnitine (https://www.neurotalk.org/myasthenia-gravis/211371-carnitine.html)

Brade 10-25-2014 12:43 PM

L-Carnitine
 
Hi,

I'm congenital Myasthenia Gravis disease. My neurologist advised me to take L-Carnitine 500mg. Are you using L-Carnitine and did you get benefit or side effects from?

Thank you.

Panorama 10-25-2014 05:33 PM

Quote:

Originally Posted by Brade (Post 1104973)
Hi,

I'm congenital Myasthenia Gravis disease. My neurologist advised me to take L-Carnitine 500mg. Are you using L-Carnitine and did you get benefit or side effects from?

Brade,

Here is the WebMD pange on L-Carnitine:

http://www.webmd.com/vitamins-supple...me=l-carnitine

What was the reason you neurologis wants you to take L-Crnitine? Do you have symptoms of high thyroid hormone levels?

-Mark-

Brade 10-26-2014 09:28 AM

Hi,

I have the problem of internal fatigue. I can stand up about 10 seconds, then I have to sit down, if do sit down for a long time, then I feel the fatigue again. This is not muscle weakness. Mestinon*improves my muscular strength, but it has no effect on this internal fatigue. So my neuro advised me to take L-Carnitine.

mrsD 10-26-2014 09:32 AM

D-ribose powder may help. This targets the mitochondrial energy systems enhancing ATP formation.

Ribose is useful for fibro patients too.

5 grams a day to start is the typical dose. You can search further if you are interested.

AnnieB3 10-26-2014 10:53 AM

Brade, Does it feel as though you're sleepy? Have you had your vitamin B12 or thyroid level checked?

When MG gets worse, it can make us feel sleepy, but don't assume that it's MG causing it.

Supplements could help, but check in with your primary doctor to see if there's another cause, okay?

Annie

Brade 10-27-2014 01:37 PM

I try it, thank you.

Quote:

Originally Posted by mrsD (Post 1105119)
D-ribose powder may help. This targets the mitochondrial energy systems enhancing ATP formation.

Ribose is useful for fibro patients too.

5 grams a day to start is the typical dose. You can search further if you are interested.


Brade 10-27-2014 01:39 PM

I don't feel like sleepy. They are both normal levels. Thank you for your advice.

Quote:

Originally Posted by AnnieB3 (Post 1105132)
Brade, Does it feel as though you're sleepy? Have you had your vitamin B12 or thyroid level checked?

When MG gets worse, it can make us feel sleepy, but don't assume that it's MG causing it.

Supplements could help, but check in with your primary doctor to see if there's another cause, okay?

Annie



All times are GMT -5. The time now is 07:20 AM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.