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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Sick of this! (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/21150-sick.html)

Desi 06-04-2007 09:54 PM
Sick of this!
 
Hi friends! Ok.. I am sick and tired of my surgen(the one who did the Carpal tunnal surgery) he found out I have tendinitis and ordered me some pain pills. (he didn't even get on the phone with me!! had his secetary tell me I have this!) ok.. I get a call from my pharmacy(Walmart) and they tell me to take a pill every 8 hrs.) vicoprophen?/ what is this?/friends, this pain is unbearable!! I have sever pain from my CT surgery still!! swollen hand, wrist, upper arm and now my shoulder! I have had this wrist pain and swollen hand since my surgery, whick was done Jan. 9, 2007 and my shoulder pain since the middle of March!! then he tells me I indeed have RSD and my bone scan showed up wrist inflamation. This surgeon is trying to get me off his back, I just know it! my other 2 speclists I go to are not until June 21st.. and the other one is July 11th. Now, the pain clinic in Cleveland, Ohio is not until late Aug. (The 16th. or 17th.) this is terriable!! the block never worked because the surgeon said he found a herniated disk in my neck.. blah blah.. I am NOT myself. I am in constant pain. my hand wrist are red, then blue.. ice cold. I'm ready to just throw in the towel. this makes me so mad. I had those blocks for NOTHING!! I can't stand that pain Dr. he called and wants to see me June 6th. for what?? more blocks?? no thank you!! Love, Desi

NikonKid 06-04-2007 11:02 PM
Desi
I had carpal tunnel release on both hands last summer and haven't been back to work since. I am glad to say I haven't had to see the ortho surgeon since January :) He totally dropped the ball when it came to the RSD, the PT was the one who diagnosed me.
What I don't understand is that from everything I read they say early treatment has the best success. Why does it take us so long to get to the right specialists?? All of the specialists I have seen took months to get appointments with. Then they try to do catch up....for me too late.
Maybe the doctor on June 6th can give you some pain meds that will give you a little relief until you see the other doctors.
Hang in there
Jeanne

Desi 06-05-2007 01:30 AM
Quote:
Originally Posted by NikonKid (Post 109118)
Desi
I had carpal tunnel release on both hands last summer and haven't been back to work since. I am glad to say I haven't had to see the ortho surgeon since January :) He totally dropped the ball when it came to the RSD, the PT was the one who diagnosed me.
What I don't understand is that from everything I read they say early treatment has the best success. Why does it take us so long to get to the right specialists?? All of the specialists I have seen took months to get appointments with. Then they try to do catch up....for me too late.
Maybe the doctor on June 6th can give you some pain meds that will give you a little relief until you see the other doctors.
Hang in there
Jeanne
Hi Jeanie! So your surgeon totally dropped the ball. hmmmmmmm.? Their idiots!! Yes, early treatment is for the best. I am getting ready to go see a lawyer! I guess if ya want the "right doctors" .. I guess ya have to wait. maybe, it's the one's who see ya right away is the ones we have to watch out for??:rolleyes: This pain Dr. that I see on the 6th. doesn't believe in pain medication's, he's an idiot. (I will NOT be seeing him ever again after I tell him off on June 6t.) LOL:D I did get Vicoprofen 7.5 for the pain from my surgeon that I have to take every 8 hrs. ya.. right.. every 8 hrs?? he has to be joking, right?? this pain keeps me up at night, the P.D. gave me Gabapentin(Neurotin) helps some but not wayyyyyyyyyyyyyy enough. ok.. enough of me complaining. thank you, Jeannie Love, Desi :hug:

junk4myemail 06-05-2007 03:19 AM
Hugs. I am annoying my doctors office and inundating them with calls every day for any cancellations and messages about how I feel each day. I am being really aggressive because I AM early in diagnosis. I had my nerve block two weeks ago but I don't have a followup appt with the doc till the END of July. That is NOT aggressive enough for me.

Good luck. In my opinion, scheduling does NOT determine worth of the doctor. I just think there are not ENOUGH of them.

AND: as funny as this will sound it was also my PT (water) who informed me I had RSD.

allentgamer 06-05-2007 03:29 AM
Doctors arent real high on my list either, heck I wouldnt even be here if one hadnt said "Oops!".

I think your still real lucky to have them at least telling you that it is RSD before the year is up. I wish I had been so lucky. A vascular surgeon finally told me I have RSD 3 1/2 years after the oops. Waaay to late!

You have to be your own advocate, and the system is against you. Be the squeaking wheel because you know what they say ;)

daylilyfan 06-05-2007 04:35 PM
Dr. Dews
 
Desi
A while back, I sent you a PM with info about Dr. Dews, on the east side of Cleveland. She's part of the Clev. Clinic... worked with Stanton-Hicks in the main campus but now she is the manager of the pain clinic at a satellite hospital office.

If you did not try her... you may want to give her office a call. It did not take them long to work me in when I told them I had RSD. I liked her. She knew more about RSD than anyone else I have been to. I wish she was still on my insurance!! Danged employer had to go an change companies - and she is not on the new plan.

If you do not still have the email with her contact info, PM me and I'll resend it to you if you are interested.

I am sorry to hear you have had such a hard time.

Jules

Desi 06-05-2007 05:30 PM
Quote:
Originally Posted by daylilyfan (Post 109340)
Desi
A while back, I sent you a PM with info about Dr. Dews, on the east side of Cleveland. She's part of the Clev. Clinic... worked with Stanton-Hicks in the main campus but now she is the manager of the pain clinic at a satellite hospital office.

If you did not try her... you may want to give her office a call. It did not take them long to work me in when I told them I had RSD. I liked her. She knew more about RSD than anyone else I have been to. I wish she was still on my insurance!! Danged employer had to go an change companies - and she is not on the new plan.

If you do not still have the email with her contact info, PM me and I'll resend it to you if you are interested.

I am sorry to hear you have had such a hard time.

Jules
Hi Jules! hey, thank you! thank you!! your a doll! So, we finally have a doctor who understands RSD.. wow!! I will for sure call her. I have a Clev. telephone book. we are only 45 min. away from Cleveland. My husband go's up to Breaksville in Clev. (Veterans hospital) that he hates. he is 100% disabled from the VietNam war and they pay for everything, plus there is a VA clinic here. Doc's din't help him much at all. hey, before I forget, I said that Wal Mart called and told me I had to take those vicoprophen(pain pill's every 8 hrs. now) well, first thing this morning I called them to ask them who do they think they are..saying;"I have RSD.. you should not tell me how to take this, it is my doctor's job.. blah.. blah. blah... well, listen to this!! My Pharmacy(WalMart) NEVER called.. it was my doctor who had his secetary tell me that WalMart said this, which they never did!! why is my doctor hiding, lying, why couldn't he have called to tell me this?? I'm so mad right now!! oh, Jules, listen to me ramble on and on. sorry:D Yes.. please pm me!! I really don't know how to thank you!! I'll just give ya some hugs, Jules!! :hug: :hug: :hug: :hug: :hug: :hug: Love ya! Desi

Desi 06-05-2007 05:43 PM
Quote:
Originally Posted by allentgamer (Post 109164)
Doctors arent real high on my list either, heck I wouldnt even be here if one hadnt said "Oops!".

I think your still real lucky to have them at least telling you that it is RSD before the year is up. I wish I had been so lucky. A vascular surgeon finally told me I have RSD 3 1/2 years after the oops. Waaay to late!

You have to be your own advocate, and the system is against you. Be the squeaking wheel because you know what they say ;)
You know, your so "RIGHT ON" here Allen, about saying that I am real lucky to have at least one Dr. telling me I have RSD (made me think):) Allen, now that you just mentioned this about you being diagnoised after 3 yrs. made me think.. hmmmmmmmmm.. I remember them screwing up my I.V. and my hand was all messed up. I had a block when they first came out.. this block numbed my entire arm and I remember the pain dr. (she was a woman) who yelled at the nurse because she didn't give me a sling (I could have broke my arm) if I slamed it against something. This block scared me so much, when my entire arm was numb, my hand too!!I mean this numbness lasted for 20 hrs. I don't know what the heck was in that medicine!! It was a neck block(ganglion) anyway, I also liked when you said;"Be the squeaking wheel because you know what they say"... Thanks Allen and hugs to you my friend. Love, Desi :hug: :hug:

daylilyfan 06-05-2007 09:02 PM
Desi
 
ok....
PM sent to you with Dr. Dews info! Hopeful that you will get it this time. Something must have happened last time I sent it that you did not get it.

Good luck!

Jules

Desi 06-05-2007 09:19 PM
tHANK YOU Jules.. I just now PM you. hope ya got it!! Love, Desi :D :hug:


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