Spinal Accessory Nerve Damage
 

I am new to the forum - Does anyone have any experience with Spinal Accessory Nerve damage causing Trapezius Palsy?

Thanks in advance for your response.

Nice to meet you!!
 

Thanks, Darlene.

Welcome Cattle Dog. :Tip-Hat:

Spinal Accessory Nerve Damage
 

I had a posterior cervical hemilaminectomy and microforaminotomy on C5-6, C6-7 in September. I have not received confirmation from the Neurosurgeon, but I believe the spinal accessory nerve was damaged during surgery.

Spinal accessory nerve injury
 

Hi cattle dog! I'm new here but just did a search myself to see if there was anyone out there who has the same injury as me!
Here is my story...

Hello!
I am SO incredibly happy to have found this community & others who are in a similar situation to me - I didn't think I would ever find such a place!!
I live in Australia and my injury was a severed spinal accessory nerve, which occurred during a routine 2-pass 16 gauge cervical lymph node core biopsy in October 2012.
In January 2013 I had a surgical repair (glue & stitch) of the neuroma which was unsuccessful.
I have CRPS, left shoulder weakness, left arm abduction of only 20-30 degrees, trapezius muscle wastage, head/neck/shoulder/arm nerve pain 24/7.
Am currently taking Lyrica, Targin and Oxynorm along with paracetamol and am also in counselling with antidepressants starting today.
My case is going to court at some stage in my life!!
I was told today that I have a permanent disability with no chance of recovery.
The last specialist I saw for a medico-legal opinion suggested the Eden-Lange Procedure for me and I am only just researching it now - it's all SO scary I don't really know what I'm doing.
Thank you for listening, I really am so emotional to have found you all and I hope that there are others of you like me out there that I can talk with and find out more about your treatments and possible help for myself along the way.
Thank you so much!
Princessmorticia [Sarah]

At the moment I am over 2yrs post-injury and am permanently injured. I wear a sling & take copious amounts of medication to try & combat my pain. I'm a celebrant and a mum of 2 and am finding it all a bit too hard at the moment!
How are you going???
Sarah

I'm a mom of 2 and have also suffered a spinal accessory injury from a cervical lymph node biopsy. I would love to chat.

Hi Erinannie35

Welcome to NeuroTalk :).

I am sorry to read about your spinal injury.

If you post in the Spinal Disorders forum (https://www.neurotalk.org/spinal-dis...and-back-pain/) I am sure that you will get support and good ideas from other members.

All the best.

C5 Palsy
 

Hello ,
I started kf with shoulder dislocation followed by rotary cuff surgery to repair full thicknesses tear and labrum. Neck pain persisted. MRI then showed 4 right sided herniated disc. Elected to only address C5-C7. Surgeon thought I would be fine with just lower two. Year later dealing with much pain, can't turn head right, can't tilted head right, stabbing pain behind my right ear if moving my head. Right shoulder pain. Difficulty raising arm. Tingling , buzzing in face, shoulder and arm and intense forearm pain only gone. Is this C5 palsy?

Hi plower,
Welcome!

Others will be along to answer your question soon but in the meantime you might want to repost in your own thread. You've brought up an older thread and people will be less apt to notice it.

Sorry I can't say anything helpful about your questions (I hang out on the MS board but don't have much information on other conditions). There are people here who will try to be helpful.

I saw the PA-C today. He has no idea what is wrong, He says I look like a robot. I say I am more like a stretch amrstong toy. I can't shrug/lift left shoulder. Cant lift left or right arm above 90 degrees without a lot of struggle and pain. Can't turn head to the right. Both shoulders hurt any time I move them. Turning left goes further but tilting down to shoulder is not much better.

I think I should have gone with the original surgeon wanting to do a 4 level ACDF using autograph packed cages and a titanium plate across the front. This surgery scared me so I got a second opinion. This surgeon did not beloved only C5-C7 was necessary and used these PEEK devices with two screws that go in between the vertebra eliminating the front plate. I belive this is where my problems got worse. After surgery I was in terrible pain every day. Stabbing like pain on right side of my head, pressure at base of my skull, neck and shoulder pain,could not sleep. It was a nightmare and could not take the pain pills. I could not do or was even asked to do any PT until 7 months later.

At the one year mark I got a CT scan which showed the the C6/C7 fusion failed. I then had a different surgeon go in through the back of my neck and fix it with rods and screws. Now I have new issues and they can't seem to figure it out. I have to get another MRI, X-rays and a nerve test. EGM test.

plower, your situation is fairly complex, and I wonder if you know about the Spinal Disorders and Back Pain forum here?

https://www.neurotalk.org/spinal-dis...and-back-pain/

You asked about C5 palsy--there are a couple of threads on that topic in that forum. You might want to take a look.:)

Yes I have been reading more and learning about what could be the possible causes of my ongoing issues. Today I had another #T MRI with and without contrast and shoulder/neck X-rays. Tomorrow I have to do a EMG nerve study. Hopefully the doc can then determine what the heck is going on. I don't have much more time before I am going to be jobless over this ordeal.

Hoping for a more favorable outcome for you, plower. And joblessness may be avoidable, particularly if you have an employer who will be flexible.

If you're self-employed but have had to miss out on work because of the time and energy involved in taking care of yourself and keeping medical appointments, that is hard to deal with. I hope you have a Plan B.