Spinal muscular atrophy?
 

Hi,

I have not been properly diagnosed yet, but doctors thought back in 2006 that "A differential diagnosis of segmental spinal muscular atrophy, which could be considered, is not likely due to the subacute onset of symptoms."

8 years later, I have severe muscle wasting on both forearms and hands, with impaired hand functions.

Were the doctors correct? I hope for a diagnosis some time soon, but at the moment, I'm looking for answers on my own.

Hi Aneczka
 

I'm following your story; I was diagnosed with sensorimotor polyneuropathy. Mine seems to be a slow progression since first symptoms 10 yrs ago, but during the last 2 years is when my motor nerves are being affected. I was able to emotionally handle the sensory symptoms but find myself struggling with coming to terms with motor symptoms. I have also had some spinal issues, but that really just muddies the water. Which symptoms come from spinal (mechanical) issues and which from the neuropathy from unknown casue? I really can relate to your frustration.

Good luck with your emg, and I look forward to your posting your findings.