NeuroTalk Support Groups - Introducing myself

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- - Introducing myself (https://www.neurotalk.org/new-member-introductions/212312-introducing.html)

Skyler

11-17-2014 02:10 PM

Introducing myself

Hi, my name is Skyler and thanks for letting me join this forum. Over the years I've seen a number of neurologists, but my disease appears to be hard to diagnose. The doctors suspect myasthenia gravis or a congenital myasthenic syndrome. My blood work came back negative twice and my single fiber EMG was also normal in 2011. My muscle weakness not only affects my legs and arms but also my breathing, chewing and swallowing. My lung function is deteriorating. So far no hard diagnosis, so no treatment. That's my story!

Rynohanley

11-17-2014 08:38 PM

Welcome Skyler! This is a wonderful forum for info, advice, and just a place to vent. Good luck to you!

Kitt	11-17-2014 08:51 PM

Welcome Skyler. :Wave-Hello:

Lara	11-17-2014 10:43 PM

Hello Skyler,

Welcome to the NeuroTalk Support Groups.

Here is the link to the
Myasthenia Gravis Forum

I'm sure you'll get lots of support and information from our members there.

take care.

Darlene

11-18-2014 01:35 AM

Nice to meet you!!

http://dl.glitter-graphics.net/pub/2...oxyxtgbw7y.gif

Skyler,

:Wave-Hello: Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug:

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