New to the group
 

Hello!

I stumbled across this forum while looking for different information about MS. I'm 38, and was diagnosed with RRMS in 2001. I have recently lost most of the support I had dealing with this very confusing illness, and am pretty much feeling very alone. After coming here a few times and reading some of the things you all post, I was encouraged to see that there seems to be so much support and compassion from all of you towards each other.

I wanted to say hello and introduce myself and hope that I may also be able to share my story and maybe in time some of this weight will be lifted off my shoulders and I will not feel so alone.

I look forward to the chance to get to know some of you!

Hi Pinky and welcome to NeuroTalk! :welcome_sign:

You're right. We have an awesome group of MSer's here and we always love to welcome new members to the group. Not that we're glad you have MS....we're just glad you found us here and want to join in! :)

We also have a forum called The Stumble Inn. It's just a place for us to talk about things other than MS. We all have lives to live and just can't let MS take a front seat all the time. Here is a link to that forum......http://neurotalk.psychcentral.com/forum102.html

Looking forward seeing you around the forums!

Hi Pinky. Nice to meet you. Please pull up a pillow and join us.
Welcome Home..:grouphug:

hi pinky and welcome to NT, glad you found us.

this is a great site not for just MS but for many other things. you can check out the other forums. sometimes things pop up in our lives that aren't MS.

anyway, i hope to hear more of your story.
i was dx'd rrms in '03 and stopped working as an RN in '05.
i'm pretty stable MS wise and i still drive and i'm independent.

hope to hear more about you.

Hi and welcome!

Hello Pinky76 and :welcome_sign: to NeuroTalk.

Thank you all for the warm welcome!

I try not to let MS always take a front seat in my life but sometimes that's not so easy. The only medication that I am taking anymore is gabapentin, and I really haven't been taking it much as I do not notice any help from it. I was put on it for pain I have in my lower back and legs. I was on copaxone for the first few years after I was diagnosed but stopped after some complications and because while I was taking it I was having a couple big relapses every year.

I have two teenage daughters (Lord help me) that I share 50% custody of. After 17 years of marriage my husband left and now I find that I have to face these challenges alone and I still can't quite get used to it. But I suppose over time I'll figure it all out. :)

It's just really nice to have somewhere to go where others know what I may be going through physically. So again I say thank you!

Pinky welcome to our group. Is there a forum like this one for your daughters to join and get info and the support they need. my daughters were 16 and 19 when I was diagnosed. They are a huge support for me and especially the younger one who is now 34 is my rock. anywhere we go together, if I need to sue a wheelchair she is the one who pushes it. She is always thinking of 'what can I do to help Mom'.

My daughters are 13 & 17. They have both seen what I have to go through, and I try to be as honest with them about everything that I can, within reason. As much as I am comfortable telling them anyway. With everything that has gone on with my divorce and all the changes they have had to face at this point I just want them to enjoy their childhood as much as they can. My youngest daughter does go to a counselor now, and my oldest talks to people when she needs to. I'm not sure they would be interested in a support group but I will certainly see what I can find out about one for them. Thank you for the advise!

Hi and welcome, Pinky :)

I am a new member here as well and I've found it to be a great place to come and be with people like me. Ask questions, get answers, and answer some questions that I know something about!

MS can be so isolating. I have a great support system, but I do feel like they just don't understand HOW much I'm suffering. And I worry that they might think I'm complaining too much, I'm not sure if they do think that or not.

I'm sorry to hear you're going through a divorce as well as having to deal with health problems. That is so unfair. But that's life, right? I always say, "these are the cards I was dealt!" and then try and move on.

Anyway, hope you find this to be a good place to visit often!