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-   -   "What happened to you?" (https://www.neurotalk.org/multiple-sclerosis/213246-happened.html)

MSbelle 12-08-2014 09:36 AM

"What happened to you?"
 
This is what the first person I saw yesterday asked me. I use my cane whenever I'm outside of the house now because falling isn't my favourite pastime. I can't believe how many people ask me why I have it though.

I realize I look young (I am 30, but I look younger) and it's not usual to see a younger person walking with a cane, but I was hoping that the general population would be considerate enough not to comment on it right off the bat.

I've been asked if I was in a car accident, if I slipped and fell, or just a demand for an answer on why I have it. I also have caught a few people staring which is not cool (thanks cashier at Walmart!). I have realized this is all just something I'm going to have to become okay with and not let it bother me. I tell everyone who asks that I have MS, why lie? I just don't like it when it turns into a conversation on how their second cousin twice removed has MS and how they're running marathons, or how (fill in the blank) cures MS (but of course Big Pharma doesn't want that information leaked!). Makes me wonder if I should come up with another story. I wish I could just go on without having to talk about it, but as soon as the cane was added to the mix, it appears I can't.

How do you deal?!?!

barb02 12-08-2014 10:26 AM

I am in my fifties, but I have had several people ask me too. Do you have knee problems? ... I also tell them I have MS and it makes walking difficult. The usual response I have gotten is that people seem embarrassed they asked and then I feel the need to reassure them that I am doing ok.

Kitty 12-08-2014 11:51 AM

I've felt the same way sometimes. Barb, I can totally relate with ending up feeling like I need to make the offending person feel better. :rolleyes:

Finally, I just got tired of trying to make insensitive people feel better about the way they act and quit trying to answer them in a way that would excuse their inconsideration.

It took some trying but I finally am at the point of feeling like I don't owe anyone an explanation of why I do anything. I'm not rude (my Mom would turn over in her grave if I were) but just truthful. :lookaround:

I figure if they're brave enough to ask a total stranger why they feel the need to carry a cane they can handle the truthful answer I choose to give them! ;)

Debbie D 12-08-2014 12:05 PM

People are just curious...when our life insurance agent came over to update our policies, DH told him I was dxd with MS. He said, "I'm so sorry. Do you know that people with MS die sooner?"
Ignorance is hard to overcome...so it's just as well that we take it with a grain of salt, a shrug of the shoulders, and a chuckle...

SallyC 12-08-2014 12:36 PM

Yes Belle, I started using a cane at 36, when going shopping, because I walked a little
like a drunk :p. I also looked young for my age (still got asked for proof, when I order
-ed a drink). If peeps had the nerve to ask the matter, I just smiled and walked on.
At the DLBureau, I'd say that I had a little Arthritis in my left knee..hahaha.

One day, what made me feel ancient :eek:, was, a little boy said to me, "my grandma
has a cane just like that one". I laughed and his mother was so embarrassed :eek:.

Kitty 12-08-2014 01:50 PM

I wish a cane helped me walk. I find it just makes it harder. Maybe I'm doing it wrong! I need a walker (rollator) or a shopping cart to keep my balance.

NurseNancy 12-08-2014 04:46 PM

kitty

what is "the truthful answer you chose to give them". i'm really curious now as i may want to adopt it.

i also usually just say i have MS. most folks let it lie at that. plus, i just keep walking. it's not like i'm staying around to have further conversation. mostly i find people helpful. they usually don't press me for any further details unless i'm in a dr's waiting room and i can't get away.

i don't let things bother me anymore either. everyone has something to deal with. mine is just more visible.

MSbelle 12-08-2014 05:04 PM

barb02- That's exactly how I feel too... like all of a sudden because I say I have MS and then they're embarrassed, I have to assure them that it's ok... But I think I'm going to stop consoling because it really isn't ok to ask unless we've at least exchanged our names!

kitty- I'm also wondering what truthful answer you give them? Just a simple "I have MS"?

Thanks everyone for sharing your stories :) Makes me feel less alone.

Kitty 12-08-2014 05:29 PM

Judy and MSbelle,

The answer I give varies. It depends on the question and how it's asked.

If it's an adult and they're rude I usually just say "I have MS and it makes everything more difficult for me" and walk away. If it's a child I tell them I have Multiple Sclerosis and nothing more unless they ask. Usually a parent or adult is around and I make sure it's alright to explain. If it's another person who is disabled or also using a cane or walker I don't mind discussing my disability.

It's always a different situation so my response varies. Sometimes it's hard to be polite but I don't want to give them more to talk about!

People are generally nice and usually just curious but I do wish they'd save their "I've got a friend with" stories for someone else. :rolleyes:

MSbelle 12-08-2014 06:42 PM

I'm in Canada where the drinking age is 19 and I **always** get ID'd. Every time unless I have my kids with me, then it's hit or miss.


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