Are there any things not to eat that could make MG worse?
 

Hi.
Im a 30 yo dude from Sweden..
So plz excuse my spelling and grammer ;)

I got the diagnosis MG in 2001. I have had surgery to remove that stuff in the chest.. don't know what that surgery is called in english. "Tymektomi" in swedish ;)

I am eating 60mg mestinon every 3rd hours and 13.75mg prednisolone every second day..

For the most I live as normal. I work on a 630tons hydralic press with some very heavy moments..
And I work as a firefighter! part time.. I have drivers license for Normal car and Truck.. (25m, 60tons)

Thats a little introduction of me just because this is my first post on this forum and so you all can see that i'm quite well most of the time.
But I do get double vision sometimes..

So what I was wondering is if there is any special food or drinks that could make me worse?..
Like now I have double vision.. I was thinking that around christmas we eat stuff we normally don't eat.. maybe it is something in the food??

I remember my doctor who told me I had MG, he told me not to drink some table water cause it could contain something called "kinin" that makes the MG worse??.. don't even remember the doctors name.. so I can't ask him again..

However.. do you guys know any thing we should stay away from??..

Hello Teljemo,

Welcome to the NeuroTalk Support groups.

I don't usually post on this forum and can't address your questions but I saw your message here and just wanted to suggest that maybe

kinin = quinine.

thx Lara.
Yes.. I believe it is =)
In the swedish wikpedia site it says:
Quinine is a substance used in the treatment of malaria, and it also has a muscle relaxing effect. The substance is extracted today from the bark of the tree china , because the synthetic process never come to industrial use.

So maybe there is something to what my doctor said..

I think the water your doctor was talking about is what we call tonic water - which contains quinine. In addition, there are some MG patients that are sensitive to/bothered by magnesium. Be aware of your intake of foods containing a lot of magnesium - leafy greans (spinach), nuts, some fish, soy beans, brown rice, avocados, yogurt, bananas, figs and dark chocolate. It is not that you should avoid these foods, (most of them are very good for you), you should just not eat an excessive amount of them, all of the time. (and don't take magnesium vitamins unless a doctor tells you to)

I would also avoid all monosodium glutamate in processed foods.

Some people get blurred vision, overly thirsty and headaches from this. MSG....learn to read labels.

It is really difficult to get excess magnesium from foods.
It is really difficult to get the RDA of magnesium daily in fact.
70% of people only get about 1/2 of what their bodies need to run efficiently.

There have been food threads here before. I suggest you use the search function here-- it is on the first page of MG forum and type in "food" and see what comes up.;)

The warnings about EXCESS magnesium have come in fact from dosing massive amounts in women with eclampsia of pregnancy where their blood pressure skyrockets and they can die from seizures. It was found that the massive bolus dose of magnesium sulfate, triggered latent MG in a few women several years ago. This they led to the generalization that excess magnesium was harmful to MG patients.

Magnesium in foods is released slowly during digestion...so it is the safest way to get daily magnesium. Supplements release the mag quickly and flood the system briefly and this is to be avoided. The RDA for adults for magnesium is 340-400mg a day elemental.

There is one thing I tend to avoid to some extent and that is Garlic as it is supposed to boost the immune system good for most people not so good for those with MG.

I don't know what others here may think of that but I tend to give it a miss anyway.

This link discusses caffeine and nightshade vegetables:
I found it with a search about "food" in this forum. It is just one example.

http://neurotalk.psychcentral.com/sh...highlight=food

Nightshades are common causes of food intolerances. They also can cause nerve pain and several of us with PN avoid them.

magnesium definitely affects me... and it's strange - most coffee makes me way better (the caffine I guess).. But there are a few types that actually make me feel quite ill, with this whooshing in my ears, mild headache and bad weakness for about an hour or so.. I just have to avoid certain types - no idea what they have in them that makes me have those symptoms, but it's miserable!

I didnt find any thread discussing this topic.. where I could find a lot of different experiences in one thread..

Need to start looking up and reading on the packages in the store then.. ;)
And all thing thats good for the immune system.. like garlic is a big no no...

I never felt caffein is any good.. drink about 3-5 cups of coffee/day (swedish strong coffee) and sometimes I feel it can make me get more double vision.. when I already have it will say!..

how about Alcohol.. I don't drink alot.. a few times /year.. but This time a year is one time I do.. when the work invites to christmas party.. only had e few beers and some whisky!..

Ask ten MG patients and you will get ten different answers. Some of this will depend on you. And it may be just the stress of all the extra activities wearing on you.

You might try keeping a food diary. Write down any symptoms you have after eating. After a while you will start seeing trends. This will help you figure out what bothers you.

A food diary is a lot of work, but I found it to be very useful. I hope this helps.

I don't think there is any one list because we are all so different. I have heard people say each MG patient is like a snowflake, unique in how they experiance the disease. Lucky us!! :winky: