HI All, I'm new here
 

I'm Roxie and I just found this site.
I have just been diagnosed with Neuropathy Myopathy by my Rheumatologist after having a (very painful) nerve/muscle biopsy. I have been having severe pain in my arms, shoulders, hands, legs and hips since early Feb. of this year.
I've had MANY MRI's, Cat Scans and blood work that was to no avail other than to show I have low Carnatine level in my system...so I'm taking supplements now. I'm not Diabetic. My Rheum. is now trying to narrow down what I have through blood work. I'm taking Lyrica for the nerve pain though it's not working real well. I've tried Neurontin and it didn't work well either. My doctor mentioned a weekly IV that might be an option but after reading about it, it doesn't sound like a good option. (has anyone tried that??) I'd love to hear from anyone with ideas, suggestions etc......
I also suffer from Barrett's Esophagus, Interstatial Cystitis and Irritable Bowel Syndrome and Osteo Arthritis.
Thanks! Roxie

Hi, Roxie, and welcome!:Wave-Hello:

I'm sorry you've had such a rough run lately, neuropathy is no picnic. There is a nifty search tool at the top of each page to help you locate specific topics that interest you. I'll look forward to seeing more of your posts.

HI Cindy!
Nice to meet you! This looks like a great site! I look forward to meeting others and learning from them since I'm new to this illness. Roxie

Hi Roxie,

:welcome_sign: to Neurotalk. I am sorry you are having pain. However you have found a great group of very supportive people here.

Hi Roxie
 

First of all welcome to Neurotalk,i have Polyneuropathy's and believe
me there are so many wonderful people here who do understand,tests,
meds. and pain. Please keep posting and once again welcome.:) :) Sue

Hi...Sorry you have so much pain! Welcome to NT!

Roxie--
 

--come on over to the peripheral neuropathy part of Neurotalk:

http://neurotalk.psychcentral.com/forumdisplay.php?f=20

and give us a rundown of symptoms, tests. etc.

Neuropathy and Myopathy are two different conditions--the former is damage to nerves, the latter, damage to muscle--but of course, one can have both simultaneously, and the most common causes of seeing both together would be autoimmune phenomena or toxic exposures.

Given your other conditions, has the possibility of celiac/gluten sensitivity been broached?