Burning feet
 

Please help my feet have been burning a lot here latly a kind of a swirling motion
I have read about it don't now which way to turn . Has anybody else had this

burning feet also
 

Hi razzle51
Burning feet here also - currently middle of summer where I am so at its worst. Can't tell you too much about it as I'm still trying to find out myself. I have an endocrine disorder (cause: auto-immune) which causes all sorts of symptoms so it may be part of that.
Burning feet as a symptom has also been linked to: Sjogrens Disease, Peripheral Neuropathy and Vitamin B deficiencies (amongst other things), so there could be any number of reasons.
Getting relief: medically so far I have found no solutions (I don't think the doc's really get how bad it is) but I get some temporary relief from basic things like sitting with feet in a bucket of cold water. To sleep at night I wrap a freezer block (like you put in a "cooler, ice chest, chilly bin" - depending on where you're from) in a hand towel and put it between my feet - will last most of the night.
Good luck finding relief - appreciate anyone with more info re diagnosis or treatment if they could post it please.

I thought I had neuropathy for a long time, turns out I have erythromelalgia. Burning feet. Biggest thing that has helped me is a specific laser treatment that uses the avicenna laser. I tried Klaser and others but they did not work. I think many people are misdiagnosed with neuropathy since many doctors do not know what EM is. My neurologist doesn't know what it is but admits after reading my papers that it sounds like I have it. I quit using her.

Laser has been my life line.

bluesfan, I wanted to add that if you put your feet in water,use plastic bags to cover your feet or the water will eventually break down your skin, get infections, cellulitis, and so much worse things.

I also have auto immune hashimoto and believe it caused my EM.

I know you have heard of
 

Morton's Epsom Salt Lotion. It helped me w/ burning, tenderness.

Just some thoughts!
 

I don't think it's a good idea to use a freezer block because the cold would stop the blood flow to your feet. I use a small fan beside my bed, and have it blowing directly on my feet. It really helps with the burning. I use Topricin lotion which I add a few drops of peppermint oil, and it helps with the pain and burning at night....good luck! :hug:

Great info thanks
 

Hi razzle51 - after my first reply to you I did further reading on the PN threads and you may already have found this one: "Anyone with Anti-MAG Neuropathy?" It's been running for a few years but has some discussion about burning feet in relation to this unusual neuropathy. You may find some useful info - sorry not sure how to put the direct link in here.
Thanks Stacy2012 for the info on erythromelalgia. I hadn't heard of that so looked it up. I don't have any of the redness typically associated with EM but I do have persistent numbness in the toe & ball area of both feet and in my left hand - slowly increasing. You're right about the confusing diagnosis with PN etc. - it's important to get as accurate assessment as possible. It took more than 10 years of misdiagnosis and treatment before I was given a definite diagnosis for Addison's Disease during a near fatal crisis. Will ask the neurologist about EM (when I finally get an appt. that is).
In regard to soaking skin in water - mine is so dry/hard that it probably does it some good. I usually only leave it in for 10-15 minutes at a time for quick relief. I also use an aqueous cream fortified with Vit E and Emu oil, twice daily as a moisturising/soothing balm.
To zkrp01 and Rosie33 thanks for the suggestions - will try some of those. I have no problem with the ice block re cold restricting circulation - having it wrapped in a couple of layers of toweling reduces the chill impact - discussed it with podiatrist who said it shouldn't be a problem. Unfortunately a fan would only add to the tinnitus and insomnia.
Good luck to all in the quest for relief. Hearing others solutions is a great motivator to try something new.

thanks for the responses , dr did diag me with Neuropathy .... not perifical kind ... gave me keppra and lorazapam and benedryl woring quite well ..

So we're your feet hot to the touch? How they discribed PN, they said a sensation of hot, but I realized later that this is real hot!
I just did a experiment with my Exergen infrared thermometer, my feet are real cold right now, the Ambian temp in the room is about 76 deg. The soles of feet measured 69 degrees, my palms are 84 degrees, and I am running a temperature 99.5 deg. My feet will heat up and get painful, then cool off and be cold to the touch.
My Rheumy thinks it is the micro capilaries misfiring, cutting off the blood flow, then when they heat up it has to much blood flow to the feet, she thinks it is a part of the neurological misfiring from SLE Lupus.
Hope they are helping you out with it!

GM Razzle51-

My PN started with numbness on soles of both feet. Over 5 yrs advanced to Severe Neuropathy, confirmed with Conductivity testing 4 times.
Take 3200 mg gabapentin and 6 mg ropiniole daily. Couldn't deal the manner in which Antidepressants interefered with my sleep. Stopped opiiates. Sedation and other common side effects became intolerable.

PN pain and periodic epidsodes of severe cramping are a daily challenge.
Consultations and testing with the best neurologists repeatedly confirmed PN and kSpinal Stenosis but without effective treatments or remediation of pain.

Moved from Detroit area where I was patient of U of M Dept of Neutology that did intervene with epidurals when crises occurred but now live in Tennessee where I'm continuing to search for a neurologist to provide ongoing PN care and pain mgmt.

I take the std supplements, Magnesium, B-12, alpha liproic acid, prescibed Vitamin-D.

Accupuncture was $70 / visit w/o noticeable benefit

My primary care is a DO that performs "Manipulation", that seems to be only non-drug therapy that's proven effective for me.
Could be worth investigating for your situation.

All the best,
Briley7333

I also have Erythromelalgia and have also struggled to find a doctor that has ever heard of EM. It has taken 5 years to find someone, but I've finally found a neurologist who is younger and, while he has not directly treated any patients with Erythro, he encountered some patients during his residency. He may not know everything, but he asks questions to gain a better understanding of my pain, he takes the time to research EM in depth, and he has reached out to one of the leading experts on the disorder to consult on my case.

What kind of laser treatments have you had that have helped? I would do just about anything to decrease the frequency/intensity of the burning nerve pain in my hands, ears, and feet Also, do you have primary or secondary Erythro?

Thanks for sharing!

My neurologist recently told me that amitriptyline is one of the best things for burning neuropathy pain. I started taking amitriptyline in 2013. Original pain was burning feet, then transitioned to severe stabbing muscle pain, all of which have improved a lot over the past 2 years. Therefore I started gradually tapering down the amitriptyline and was down from 60 mg to 20 mg per day. At my neurologist visit I reported that, and also that the burning in my feet had returned. I never put 2 and 2 together until she pointed it out. Now I'm back up to 40 mg and the burning has improved a lot. My neuropathy is from undifferentiated connective tissue disease (aka incomplete lupus/sjogrens).

I hate to ask such a bazaar question, but I've been diagnosed with SFN, no biopsy, but based on symptoms. Large fiber and muscles okay. When. I go the bathroom, doesn't matter which, both my feet begin to burn and then as I go, the burning gets less and once I'm done, the burning in my feet are gone. If I stand in same position or sit in same position, no burning, only when I'm using restroom. Anyone have an idea? Is this something totally separate of SFN? People think I'm nuts, but it happens every time.

I've been dealing with burning/tingling for over 9 yrs since hip replacement. I know it's nerve damage and don't have to go to docs to tell me that and what kind. I have learned a lot here and working with Dr.. Google

Grape Seed Extract which I've been taking for 25 yrs soon I know has helped my issues.

Topricin for Pain is what I favor topically and especially for feet and wear socks all the time. It contains 11 homeopathic solutions and some directed to Nerve Pain and Damage.

Vicks Salve and ultra tiger balm are two other favorite topicals.

Franincense oil is a wonderful pain calming oil.

I've posted a lot here and some of what I've posted have helped me. Does this ever go away, probably not, but it does become manageable.

You mentioned in your post that you take 3200mg Gabapentin as well as 6mg Ropinirol. I am taking both medications as well, albeit in smaller dosis. I am wondering if you have any side effects. In my case the ropinirole makes me very dizzy and tired, which is a nuicance during the day, but helps with sleeping at night.because it kills the neuropathy and RLS. Please let me know. wenders

I have the same sensation as you. I see many of the members here have been diagnosed with PN, and then the diagnose change at a later stage. My doctor has diagnosed me based on my description of my pain. As I told her: without my painkillers (Methadone 20 mg) it`s like standing bare foot on ice unable to move. At first it`s really cold, then the feeling change into a severe burning feeling, combined with numbness. It reach 8-9 on the pain scale quite fast.
The strange thing is that my feet is better in the morning. It takes about 2 hours to become unberable.

How did you get the diagnosis of erythromelalgia? What tests were performed to aid in the diagnosis?

It's interesting so many continue to go for a diagnosis...as far as I'm concerned, we know when we have nerve pain, tingle, burn. That's neuropathy. The docs will prescribe drugs and then one deals with the side effects of the drugs, and then the issues withdrawing from the drugs. A major vicious cycle.

Another member is talking about the overload of histamines in the body and what to do to get those down. Look at that info, it's not new info but so forgotten. I swear by Vit C and Grape Seed Extract to lower histamine issues.

As for topicals, I forever talk about how valuable Topricin for Pain is in my life...makes my feet and knee etc feel like day and night..